Tag - special needs

1
Digital Tools To Help ALL Students Achieve Success: IncludEd Part 2
2
How Amazon Alexa Helps With Speech Development
3
When Your Child Gets Stuck In A Verbal Loop
4
Introducing Your Child With Special Needs To New Classmates
5
Team Canada (Special Abilities Division) World Cheerleading Champions
6
Let’s Pop The Age 7 to 11 Bad Behaviour Bubble
7
When Your Child’s Speech Delay Gets Worse
8
Goldfish Swim School Oakville
9
Teaching Your Child With A Disability To Ice Skate
10
When People Stare At My Child Who Has Special Needs

Digital Tools To Help ALL Students Achieve Success: IncludEd Part 2

Recently someone tagged me on Twitter, attacking me for my lies relating to the current state of our school system. I was shocked, but then I laughed uproariously when I realized this outraged woman had confused me, Lisa Thornbury, with the Ontario Minister of Education, Lisa Thompson. As I respectfully corrected her mistake, several tweeps suggested I take the other Lisa T’s place. Well thank you, but I don’t certainly have the stomach or the thick skin required for politics. However, if I did assume the role of Minister of Education there are a number of things I would do. And undo. The list is lengthy, but I’d start by making education an actual priority and begin on the front lines by offering teachers much needed support. Have you ever volunteered in a classroom? Ever go on to field trip or do homework with your child? If so, you know that teaching is not for the faint of heart. But, it’s our goal as a society to equip students with the skills needed to become functional adults. So it’s a no-brainer that we need to support teachers in every way possible so they can teach.  So what do we do?[…]

Read More

How Amazon Alexa Helps With Speech Development

When our daughter was a baby we were told she would likely be non-verbal. We used ASL with her from an early age. Slowly she gained sounds, then words, and then short simple sentences. She is still profoundly speech delayed, but is developing new words and phrases every day.  Speech therapy, activities and games that promote language development, and simply chatting with her every day casually modelling speech, have helped tremendously.  Smart technology is the latest helpful tool. Before I go into how much we’re loving our new family member, Alexa, let me start by admitting that I’m fundamentally against Google Home and Amazon Echo and all these smarty pant eavesdroppers. In fact, I’m so turned off by the invasion of privacy that I made my husband return the Google Home unit he bought me for Christmas. I made quite the stink about it, ranting about how they’re always listening and how wrong and insidious the whole thing is.  Flash forward to the week we spent at my brother’s house over New Years. They have an Alexa Echo and I fell for her, madly. This digital gal knows pretty much everything about anything. She can make life not only easier, but[…]

Read More

When Your Child Gets Stuck In A Verbal Loop

I’m a pretty easygoing parent. I don’t yell. I almost never yell. I prefer slow smouldering jaw clenched whispered threats. They effectively scare both my kids and my husband. Fortunately, I don’t need to pull out the eye daggers often.  I’m pretty patient—especially when it comes to dealing with my daughter’s idiosyncrasies. If I feel annoyance creeping in I simply remind myself that she’s trying her best and whatever she’s doing, it isn’t intentional.  Like, she’s a very noisy eater. As a card carrying Misophonia sufferer, her lip smacking doesn’t bother me because I know she can’t help it. But God help my husband if he slurps a drink or smacks his lips. That’s a swift kick to the groin right there. My daughter asks a lot of questions and I try to answer every one. She tells endless knock-knock jokes and I always ask who’s there.  It can take a long time for her to complete a sentence. I patiently wait it out. Putting on her shoes or zipping up her coat can take ages. I wait without complaint, even if we’re late. Eating her dinner can take hours and I rarely lose it. But the one thing I struggle[…]

Read More

Introducing Your Child With Special Needs To New Classmates

This school year we decided to introduce our daughter, who has special needs, to new classmates by way of a “Get To Know” Avery video.  It’s normal for kids to be curious about differences. Some kids approach Avery, respectfully. They can see there’s something different about her, but they treat her kindly anyway. Some kids shy away from her. Some ignore her or deliberately shut her out. And sometimes, but thankfully not as often, some kids make fun of her behind her back.  When we talk about Avery’s struggle with speech and explain why it’s difficult for her to form certain sounds, kids understand her challenges better and it makes them more comfortable around her. Also, when they know why she sometimes gets stuck in a repetitive verbal loop, repeating the same thing over and over, they’re less likely to feel frustrated with her because they know it’s not on purpose. She’s trying her best.  When kids are given Avery’s back story, and know that it’s okay to ask questions about Avery, the staring and stand-offish behaviour almost always stops. In fact, when kids understand her challenges, they treat Avery as just one of the gang. Actually, they are quite protective of her. […]

Read More

Team Canada (Special Abilities Division) World Cheerleading Champions

When doctors express concerns about something being “wrong” with your new baby, you can’t believe it. You refuse to believe it. Looking down into your child’s perfect face, all you see is beautiful potential.  But when the chromosome test comes back, and you eventually accept that your child is in fact, imperfect (genetically speaking that is, because she is perfect in every other way), you make plans.  When you are the parent of a child with special needs, there are so many plans that need to be made—for her health, for her education, for her safety, for her development, for her future. All to ensure that despite her disabilities, she will have the chance to be the best version of herself and to, as they say, live her best life.  So we taught her (and ourselves) sign language. We took part in too many therapies and programs to mention. And when she expressed an interest in a sport or activity, we put our fears aside and let her try.  Last fall Avery joined the special abilities cheer team, Team PCT Eternity, at Power Cheer Toronto. Her excitement trumped my hesitation.  Lead by the most incredible team of coaches and volunteers,[…]

Read More

Let’s Pop The Age 7 to 11 Bad Behaviour Bubble

When I taught elementary school I didn’t tolerate rude behaviour from my students. My role as an educator afforded me the right to address disrespectful conduct and hopefully turn it around.  As a parent I don’t accept rude behaviour from my own children. In my role as queen of my house, I shut down snarky comments and eye-rolls, right quick.  But as a person in the world, trying to teach my kids, but also protect them, sometimes I have to tolerate other people’s rude kids.  I want to shake these parents and say, “What are you doing?? Why are you allowing this? Teach your kids to be nice!” The shaking part is probably assault. So I keep my hands to myself and my mouth shut.  But it’s really, really, really, really, really hard.  The other day I drove my son and his friend into Toronto and dropped them off at a theatre to see some You Tuber celeb guy. I don’t know. I don’t understand it. But they, along with the thousands of other fans were excited, so I don’t question it.  My daughter and I had to wait a few hours for them, so we found a shady park in The[…]

Read More

When Your Child’s Speech Delay Gets Worse

We started learning American Sign Language as soon as we found out about our daughter’s genetic disorder—one that is almost always associated with severe speech issues. We relied on a variety of ASL resources, but a favourite (and the most fun) was a PBS show called Signing Time. A friend gave us the DVD set which we watched a hundred times. It’s no longer on television, but you can find it on You Tube.  As Avery started verbally saying words, and eventually longer more complicated sentences, sign language went to the wayside. She was talking with actual, understandable words and it was the sweetest sound.  Two years Avery was formally diagnosed with a profound speech delay. We weren’t surprised, but we were hopeful that with maturity and hard work, her speech would improve. And it did. For a little while.  Since then, her speech has declined even more. Especially in the past few months. I tend to panic when I don’t know why things are happening. And for no apparent reason.  The ideas are there—she knows what she wants to say and she wants to say it, but she struggles to get the words out. Like, really struggles. It’s hard to watch.[…]

Read More

Goldfish Swim School Oakville

We’ve been trying to teach our daughter to swim for years—on our own and through a variety of classes, but success has been elusive.  We were optimistic about an adaptive swim class offered by the city, but once again, progress was minimal. The pool was freezing—like blue lips, could barely make it through the class, frigid. It was also large and loud, with way too many distractions. The instructors tried their best, but aside from one-on-one instruction, there was no real distinction between this “adaptive” program and a regular community swim class.  I was sceptical when I heard about the Goldfish Swim School opening near us. I didn’t believe it would be any different from past swim school experiences.  But, we decided to give it a try and holy sh…allow waters! Avery’s swimming has dramatically improved after only a few months of weekly lessons. She was swimming confidently, and with proper technique, after only four classes!  I’ve since recommended Goldfish Swim School to everyone!! Friends, neighbours, strangers on the internet, random moms in the grocery checkout line. It’s just so exciting to have found a program that is fun, safe and effective. We love it so much that my son is[…]

Read More

Teaching Your Child With A Disability To Ice Skate

I love my daughter. I enjoy skating. But I don’t love or enjoy skating WITH my daughter. In fact, I’d rather do anything else. However, she’s desperate to learn. I don’t understand her fascination, but I suspect she saw it on a television show and has taken a fancy to it. So we’re trying. And boy is it ever trying. People have said, “It’s not like skating is a vital lifeskill like swimming or something. So why bother?” I know. Skating isn’t an essential skill, but the heart wants what the heart wants… (so even if the heart’s mother can’t stand being cold, whaddayagonnado?) When I saw that Erin Oak Kids was offering a Family Skate program at a rink near us, I signed us up. Us. As in I have to be on the ice with her the whole time. Though there are some wonderful therapists and enthusiastic volunteers on the ice to help, this isn’t lessons. This is a designated block of time, a freezing cold ice block of time if I may, for families with kids with disabilities to have “fun” learning to skate. So. Much. Fun.  Do you hear the negativity here? I do. And I[…]

Read More

When People Stare At My Child Who Has Special Needs

  When strangers stare at my daughter I feel embarrassed, angry, defensive, indignant. I feel all the feelings in no particular order.  Sometimes I make direct eye contact with the starer. Sometimes I call them on it. Sometimes I don’t.  It’s emotional for us when people turn to look at our kids. And when their stares linger, it’s hard to handle.    But I try to remind myself that different draws attention. It’s human nature to be curious. People aren’t generally cruel. They’re just trying to figure it out.  So last week when my son’s gaze fell upon a girl with Down Syndrome and his glance lasted a few seconds too long, and was perceived as a stare, I understand why her mother glared at him.  He looked upset after swim practice. Not only were his eyes stinging from the chlorine, he was feeling the sting of guilt because he’d upset the mother of a girl in his class.  He explained that when he got out of the pool he noticed a girl about Avery’s age standing on the pool deck waiting for her sister. He spotted a school crest on her shirt and he was trying to get a better[…]

Read More

All images and text are copyright © 2019 Forever In Mom Genes