Category - Special Resources

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How Early Intervention Helped Our Daughter Walk And Talk
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Because She Was
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Advice From A Special Needs Mom In The Middle
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Digital Tools To Help ALL Students Achieve Success
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25 Quotes About Parenting A Child With Disabilities

How Early Intervention Helped Our Daughter Walk And Talk

Raising a child with intellectual or physical challenges is well, challenging. That’s why getting the support you need early on is crucial. Despite doctors telling us there was nothing wrong, we knew otherwise. Parents always know. We feel it in our gut. Mother’s instinct—it’s real and it’s powerful. Though her birth was unremarkable, when she was a few months old we started having concerns. Our already tiny baby girl was losing weight and the milestones that mark healthy development weren’t being achieved. True fear kicked in when our daughter stopped feeding. We were losing her and we fought to make doctors listen. By the time they did, our baby was in full “failure to thrive.” It was at this time, when Avery was eight months old and living full-time in the hospital, that we got a diagnosis. We heard the words, “Chromosomal Translocation Disorder” and “Rare Syndrome” and “We are so sorry.” We fed her through a nasal gastric tube and she began to gain weight and the colour came back to her cheeks. With her health and growth on track, we turned our attention to her development. What would a disorder like this mean for our child? What would[…]

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Because She Was

When I first met Shelley Brouwer on Instagram I felt her warmth instantly. She was genuinely interested in my daughter and happily cheered on each of Avery’s little victories. At the time I had no idea what Shelley had been through. Then one day she messaged me to say she had written a book about life with her daughter. She asked if she could send me a copy of Because She Was. I was hesitant to read it at first—through Shelley’s beautiful Instagram posts and blog, I’d already discovered the ending. I brought the book with me on a road trip and read it from cover to cover in a few short hours. I couldn’t put it down. As my husband drove and the kids were busy with tech and snacks in the backseat, I read and cried intermittently along with the windshield wipers. At one point my husband said cautiously, “Lis, I don’t know if you should be reading this…” He was worried because of the tears. And yes, parts of the story are heartbreaking, but I was completely drawn in. Shelley’s beautifully written story weaves forward and back in time, outlining the history of her family’s remarkable life. And though[…]

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Advice From A Special Needs Mom In The Middle

If you were to divide your special needs parenting life into stages, they might be arranged from the day your child is diagnosed with differences, to the period when they reach adulthood and possibly independence, or the equivalent based on their abilities. Some parenting timelines might end before that. I can’t bear to think about that. I know parents who had a child leave this earth too soon, and though it’s painful to imagine, I have learned so much from them. Their stories about grief, and strength, and compassion, and courage have encouraged me to find gratitude through the difficult days.  I’m a mom currently somewhere in the middle.   I read this quote recently. I don’t know who wrote it originally, but I thank them for these words.  One day you will tell your story of what you’re going through now, and it will become part of someone else’s survival guide.    Sharing our unique family’s story helps me to process, celebrate, and make peace with what whatever we’re going through. And if it happens to help or comfort or even guide others who are following behind us, that’s even better. Here a few things that we’ve learned along the way;[…]

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Digital Tools To Help ALL Students Achieve Success

Recently someone tagged me on Twitter, attacking me for my lies relating to the current state of our school system. I was shocked, but then I laughed uproariously when I realized this outraged woman had confused me, Lisa Thornbury, with the Ontario Minister of Education, Lisa Thompson. As I respectfully corrected her mistake, several tweeps suggested I take the other Lisa T’s place. Well thank you, but I don’t certainly have the stomach or the thick skin required for politics. However, if I did assume the role of Minister of Education there are a number of things I would do. And undo. The list is lengthy, but I’d start by making education an actual priority and begin on the front lines by offering teachers much needed support. Have you ever volunteered in a classroom? Ever go on to field trip or do homework with your child? If so, you know that teaching is not for the faint of heart. But, it’s our goal as a society to equip students with the skills needed to become functional adults. So it’s a no-brainer that we need to support teachers in every way possible so they can teach.  So what do we do?[…]

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25 Quotes About Parenting A Child With Disabilities

Here are a few quotes about parenting that never fail to deliver a ray of sunshine on the difficult days. Feel free to leave a comment with a favourite quote that inspires you. 1. “Motherhood is about raising and celebrating the child you have, not the child you thought you would have. It’s about understanding that they are exactly the person they are supposed to be and that, if you’re lucky, they just might be the teacher who turns you into the person you are supposed to be.” ~ Joan Ryan 2.  “One of the great things that any community can do is not teach tolerance, but live tolerance, not talk respect, but live inclusivity.” ~ Michael Pritchard 3.  “The best and most beautiful things in the world cannot be seen or even touched. They must be felt with the heart.” ~ Helen Keller 4.  Don’t focus on what she can’t do. Focus on what she can do. Like a boss. ~ Lisa Thornbury 5.  “Parents of children with special needs create their own world of happiness and believe in things that others cannot yet see.” ~Unknown 6.  “Sometimes the things we can’t change end up changing us.” ~ Unknown 7.  “Listen[…]

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