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How Early Intervention Helped Our Daughter Walk And Talk

Nov 29 2019

Raising a child with intellectual or physical challenges is well, challenging. That’s why getting the support you need early on is crucial. Despite doctors telling us there was nothing wrong, we knew otherwise. Parents always know. We feel it in our gut. Mother’s instinct—it’s real and it’s powerful. Though her birth was unremarkable, when she was a few months old we started having concerns. Our already tiny baby girl was losing weight and the milestones that mark healthy development weren’t being achieved. True fear kicked in when our daughter stopped feeding. We were losing her and we fought to make doctors listen. By the time they did, our baby was in full “failure to thrive.” It was at this time, when Avery was eight months old and living full-time in the hospital, that we got a diagnosis. We heard the words, “Chromosomal Translocation Disorder” and “Rare Syndrome” and “We are so sorry.” We fed her through a nasal gastric tube and she began to gain weight and the colour came back to her cheeks. With her health and growth on track, we turned our attention to her development. What would a disorder like this mean for our child? What would[…]

Nov 04 2019

Are people more entitled than ever or am I just getting old and cranky? I nearly lost my mind when an episode of what I’m calling an “Engorged Sense of Entitlement” unfolded before my eyes at my daughter’s swimming lesson. Our local pool is stupid freezing so when lessons ended, my little swimmer had blue lips and icy skin. There are only four shower stalls in the locker room—one was broken and the other three were occupied, so we waited to rinse and warm up. Several minutes went by and my daughter continued to wait and shiver. The three mothers waiting in front of the occupied shower stalls stood stone faced, avoiding eye contact though they were fully aware of us standing right behind them. They didn’t encourage their daughters to hurry even though others were obviously waiting (by this time a long line had formed behind us). Instead they told their girls to scrub their hair and clean behind their ears. These kids were taking their full bedtime shower complete with shampoo, conditioner, and a leisurely soak. We waited over ten minutes before one curtain finally parted and a girl stepped out. My daughter hopped in and was in and out in under three[…]

Oct 29 2019

Caring for, playing with, and loving a pet has innumerable therapeutic, developmental, and soul nurturing benefits. Our daughter has intellectual and physical challenges and she requires a variety therapies. Her favourite form of therapy and the one with zero negative side effects is pet therapy. When I said ZERO negative side effects I may have glossed over one annoyance. Surprisingly it’s not the ridiculous amount of time it took to house train Avery’s new puppy. Did you know Yorkshire Terriers take great pleasure in peeing on every carpet in the house? It took well over a year, but she’s finally pee trained. Mostly. (We still don’t have any area rugs down on the floors though just in case…) Barking is the major hesitation I had when my daughter begged for a “wittle” dog. Little dogs have a reputation for yapping—a jarring, ear-piercing bark that makes me jump out of my skin. I love this little dog, but when she starts barking I forget how cute she is. I finally relented however because a tiny dog for my mini Dr. Doolittle daughter to love and look after was the right thing. But the barking… 😤 A friend told me about a bark collar they got[…]

Oct 04 2019

When I was a kid my teeth were a hot mess—think skinny jack-o-lantern with a spiral perm. So, thanks mum and dad for shelling out the big bucks to fix my janky buckteeth. I knew early on that both of my children would also require orthodontics. My son’s teeth were an easy fix. One year of braces and his smile is now movie star quality. My daughter on the other hand… Her teeth were crowded and twisted and coming in at all kinds of wonky angles. Not only did she inherit my dental disaster genes, her own genetics added an additional yikes factor. She has a small jaw and a very high, misshapen palate. One of her front adult middle teeth was angled out in such a way that one fall could easily knock it out. Our dentist recommended extractions and then follow up with an orthodontist for the first round of braces. Both of my kids would be receiving orthodontic care at the same time—convenient in terms of double teaming appointments, but… cha-ching. Our first task was finding the right orthodontist. We needed somebody who would be exceptional with a child with exceptional needs. The story about the dentist who terrified my daughter[…]

Sep 26 2019

Dear Greta, You have been criticized for speaking the truth that nobody wants to hear. You have been disregarded and disrespected. You have been ridiculed for being different. As a mother of a child with differences, and as a person sharing this world with you, I am outraged. Instead of applauding your passion and wisdom, the adults you turned to for help, mocked you. The President of the United States callously belittled you on Twitter. Shame on him and people like him with their narrow-minded spite. Please ignore the ignorant haters. Don’t give up. I hear you. My family hears you. We are listening to your every fact, warning, and call to action. People point out your differences as though they are a flaw or cause for shame. You view “Asperger’s not as a disease, but as a gift.” Your gift helps you see the world in a unique way—not through rose-coloured glasses, but with crystal clear clarity. Your neurotypical diversity and empathy have set you on this course as a crusader. Though your classmates were concerned when they watched films about pollution and starving polar bears, after class they were able to put those images aside. You couldn’t do that. You don’t work[…]

How Early Intervention Helped Our Daughter Walk And Talk

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