Category - Speech Delay

1
How Early Intervention Helped Our Daughter Walk And Talk
2
When Your Child Gets Stuck In A Verbal Loop
3
Introducing Your Child With Special Needs To New Classmates
4
When Your Child’s Speech Delay Gets Worse
5
I Have A Few Choice Words For That Judgemental Woman

How Early Intervention Helped Our Daughter Walk And Talk

Raising a child with intellectual or physical challenges is well, challenging. That’s why getting the support you need early on is crucial. Despite doctors telling us there was nothing wrong, we knew otherwise. Parents always know. We feel it in our gut. Mother’s instinct—it’s real and it’s powerful. Though her birth was unremarkable, when she was a few months old we started having concerns. Our already tiny baby girl was losing weight and the milestones that mark healthy development weren’t being achieved. True fear kicked in when our daughter stopped feeding. We were losing her and we fought to make doctors listen. By the time they did, our baby was in full “failure to thrive.” It was at this time, when Avery was eight months old and living full-time in the hospital, that we got a diagnosis. We heard the words, “Chromosomal Translocation Disorder” and “Rare Syndrome” and “We are so sorry.” We fed her through a nasal gastric tube and she began to gain weight and the colour came back to her cheeks. With her health and growth on track, we turned our attention to her development. What would a disorder like this mean for our child? What would[…]

Read More

When Your Child Gets Stuck In A Verbal Loop

I’m a pretty easygoing parent. I don’t yell. I almost never yell. I prefer slow smouldering jaw clenched whispered threats. They effectively scare both my kids and my husband. Fortunately, I don’t need to pull out the eye daggers often.  I’m pretty patient—especially when it comes to dealing with my daughter’s idiosyncrasies. If I feel annoyance creeping in I simply remind myself that she’s trying her best and whatever she’s doing, it isn’t intentional.  Like, she’s a very noisy eater. As a card carrying Misophonia sufferer, her lip smacking doesn’t bother me because I know she can’t help it. But God help my husband if he slurps a drink or smacks his lips. That’s a swift kick to the groin right there. My daughter asks a lot of questions and I try to answer every one. She tells endless knock-knock jokes and I always ask who’s there.  It can take a long time for her to complete a sentence. I patiently wait it out. Putting on her shoes or zipping up her coat can take ages. I wait without complaint, even if we’re late. Eating her dinner can take hours and I rarely lose it. But the one thing I struggle[…]

Read More

Introducing Your Child With Special Needs To New Classmates

This school year we decided to introduce our daughter, who has special needs, to new classmates by way of a “Get To Know” Avery video.  It’s normal for kids to be curious about differences. Some kids approach Avery, respectfully. They can see there’s something different about her, but they treat her kindly anyway. Some kids shy away from her. Some ignore her or deliberately shut her out. And sometimes, but thankfully not as often, some kids make fun of her behind her back.  When we talk about Avery’s struggle with speech and explain why it’s difficult for her to form certain sounds, kids understand her challenges better and it makes them more comfortable around her. Also, when they know why she sometimes gets stuck in a repetitive verbal loop, repeating the same thing over and over, they’re less likely to feel frustrated with her because they know it’s not on purpose. She’s trying her best.  When kids are given Avery’s back story, and know that it’s okay to ask questions about Avery, the staring and stand-offish behaviour almost always stops. In fact, when kids understand her challenges, they treat Avery as just one of the gang. Actually, they are quite protective of her. […]

Read More

When Your Child’s Speech Delay Gets Worse

We started learning American Sign Language as soon as we found out about our daughter’s genetic disorder—one that is almost always associated with severe speech issues. We relied on a variety of ASL resources, but a favourite (and the most fun) was a PBS show called Signing Time. A friend gave us the DVD set which we watched a hundred times. It’s no longer on television, but you can find it on You Tube.  As Avery started verbally saying words, and eventually longer more complicated sentences, sign language went to the wayside. She was talking with intelligible words and it was the sweetest sound.  Avery was eventually formally diagnosed with a profound speech delay. We weren’t surprised, but we were hopeful that with maturity and hard work, her speech would improve. And it did. For a little while.  Since then her speech has declined even more. Especially in the past few months. I tend to panic when I don’t know why things are happening. And for no clear reason.  The ideas are there—she knows what she wants to say and she wants to say it, but she struggles to get the words out. Like, really struggles. It’s hard to watch. Harder still, for me at[…]

Read More

I Have A Few Choice Words For That Judgemental Woman

My daughter is CHATTY. There’s rarely a moment of silence with her around unless— a) she has a mouthful of food. b) she’s sleeping (though she talks in her sleep a fair bit). c) I’m brushing her teeth but even then, she manages to hum. d) she’s absorbed in sending a text (which is essentially digital talking) or watching TV.  Her chattiness is amazing considering her “profound speech delay.” Perfectly formed sentences be dammed, if she makes an observation or has a question, you’re going to hear about it.  She might know what she wants to say, but finding the right words is a struggle. I’m having a similar issue at the moment. I’m forgetting the names of simple household items and stumbling over my words. Turns out this is a very real and very annoying side effect of peri-menopause. Oh hoorah, good times ahead.  Anyway, that’s to say, I get it. It’s incredibly frustrating to know what you want to say, but due to wonky wiring between the word bank in your head and your mouth, the words escape you.  As Avery’s family, we almost always know what she’s trying to say and we usually let her finish on her[…]

Read More

All images and text are copyright © 2020 Forever In Mom Genes