Archive - 2020

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Disability Awareness
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Practical Magic—Holiday Gifts For All
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Modesty—A Milestone
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I Lied To My Child About Back To School For A Good Reason
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Why We’ve Chosen At Home Learning This Year—Our Interview With CBC

Disability Awareness

The hashtag #disabilityawareness is a curious one. I mean, if you have a disability or love someone who does, you are well aware. But alas, making others aware is the point of such social campaigns. You might think you understand what it’s like living with an intellectual or physical disability. But, unless it’s your reality, you don’t know. Not truly. Last week was the “International Day of Persons with Disabilities.” It’s a day, primarily on the internet, created as a means to celebrate differences and to educate about life with disabilities. It’s also an opportunity to discuss what it means to be ableist. As the parent of a child with a disability, I’m learning to embrace the words disability and disabled. I’m of the “special needs mom” generation. But, it turns out you can teach an old dog new tricks. Yes, I referred to myself as an old dog in this scenario. Avery’s class honoured the day by each sharing a bit about their particular disabilities. Here is what my daughter proudly shared. While you’re here, I wrote this a few years ago about why disabilities are not “special needs.”

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Practical Magic—Holiday Gifts For All

I’m all for holiday magic, but I’m also a fan of practicality. So I guess I’m looking for some practical magic this year. And I don’t mean the 1998 film starring Nicole Kidman. My daughter put a hover board, roller skates, a caster board, and a “big” bike on her wish list. What’s up with this kid’s obsession with wheels?? As much as I’d love to give her anything she asks for, my priority is to keep her out of the ER. So, I’ve had to think outside the gift box this year (this weird online-shopping-because-of-a-freaking-pandemic, year) to come up with holiday gifts that are maybe not as fun as being on wheels, but enjoyable (and practical and accessible) nonetheless. Before diving into this list of ‘practical magic’ gift ideas please note… If the item was gifted to me by a brand, I’ll state that in the description. For some gifts I’ve included an affiliate link to the item on Amazon—where you can check the price, get more details, and most importantly READ THE PRODUCT REVIEWS. I never buy anything online these days without checking reviews first. HOWEVER, if you can find the item or something similar from a local[…]

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Modesty—A Milestone

She didn’t always dance or sing. Until now. She dances and sings with joy. And very recently, with some self-awareness driven modesty.

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I Lied To My Child About Back To School For A Good Reason

Today may have been a mistake. Maybe it wasn’t? But it certainly felt wrong at the time. But maybe it ended up okay after all?? I’m second guessing the crap out of my parenting choices these days. We’re keeping our youngest home from school this fall. We were rock solid in our decision. But now I’m not as sure. Our daughter should be entering her first year of high school in a Community Pathways Program (aka Spec Ed/Lifeskills) this year. We’re keeping her home for obvious reasons—health risks, what about masks, social distancing is difficult for her, I’m home anyway, blah blah etc.  This cohort of grade nines who will be Avery’s classmates for the next seven years seem friendly and funny and full of spunk and personality. These kids are destined to become Avery’s “people” and it breaks my heart that we’re keeping her from them. Of course, that’s my heart speaking. My brain knows her place is safe at home. And when the time is right, she’ll go to school and it’ll be perfect.  A few weeks back Avery was invited to attend a virtual tour of her new high school. We declined. I mean, why rub salt in[…]

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Why We’ve Chosen At Home Learning This Year—Our Interview With CBC

📷  Spencer Gallichan-Lowe/CBC Avery was on the 6 o’clock news last week. The title of the CBC news segment was, “Why some parents of kids with special needs are making the ‘heart-breaking’ choice of at-home learning.” You can read the full story on the CBC website HERE and the video segment that aired is below.  When the reporter called to talk to me about our decision to opt out of in person learning, I had a lot to say. When she asked if I’d appear on camera to elaborate, I agreed (even though I was in “active wear” and hadn’t washed my hair in um, awhile). The news van would be at our house in an hour so I scrambled to shower and find something to wear. As an aside, the camera really does add 20+ pounds, so high waisted pants that tie at the midriff, paired with a tight tank that belongs to your daughter is not the most flattering wardrobe choice. But I digress… As I got dressed, I braced myself for a difficult discussion. We had given ourselves a deadline of September 1st to tell our daughter she wouldn’t be attending school in person. I dreaded breaking this news to[…]

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