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You Make Life Better—A Love Letter

Apr 23 2015

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Special Needs, Stories

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Our daughter has a rare chromosome deletion/duplication which causes developmental disabilities and epilepsy. Forever in Mom Genes is where I share stories and information about atypical parenting and family life. I'm glad you're here. Read more.

Have You Read These?

Family Films and Fun: 2016 TIFF Kids International Film Festival AND digiPlaySpace
Centreville—A New Family Tradition Starts Now
C is For Cookie and Also Catastrophe
Friends Supporting My Kids—It Takes Village
The Kindness Gene
Magical Meal Moments…mostly

Forever In Mom Genes

Wham Bam Instagram

And that right there is my heart, beating outside

And that right there is my heart, beating outside my chest x 2.

Grade 9 and grade 12 today.

#theygrowupsofast #understatement #backtoschool2020 #highschoolers #butimsoyoung 😆 😢

I straight up lied to her yesterday after her virt

I straight up lied to her yesterday after her virtual meet and greet with her new classmates. I felt so guilty, but pandemic parents gotta do what pandemic parents gotta do. 🤷‍♀️

The full story’s on my blog linked here: @lisathornbury

#theparentingchoiceswemake #virtuallearning #littlelies #pantsonfire #remotelearning #specialneeds #specialcircumstances #whatchoicedowehavereally #keepthemsafe #specialneedsblogger #intellectualdisabilities #specialneedsmom #diversityandinclusion

This snappy number was taken at the beginning of C

This snappy number was taken at the beginning of Covid—you can tell by hubby’s neatly coiffed hair (swipe right to witness his mop 6 months later! Thanks Nice touch with the purple scrunchie Avery!)

These two have always been close, but after spending every minute together for half a year, they’re inseparable. Now that daddy’s gone back to work (he’s an amazing phys ed teacher) I have one sad little girl on my hands. On his first day back last week, she was inconsolable. I tried to distract her with a special lunch out, and thought it was working until she said, “This is fine but, it’s not fun without dad.” :(

The daddy daughter bond is strong. 💕

#dadsanddaughters #danceitout #whatilikeaboutyou #theromantics #specialneedsdad #familydanceparty #parentingduringcovid #specialneedsfamily

“Thornbury Academy” is in full swing. I call t

“Thornbury Academy” is in full swing. I call this activity, “Build sh*t while mum eats breakfast and scrolls Instagram.” 😆

This lesson will be followed by a field trip called, “Drive Granddad to an appointment and wait in the car and watch You Tube on the iPad.”

In case you’re wondering, this is not an accredited institution of learning, but the students and faculty seem to like it so far. ;)

#remotelearning #backtoschool2020 #homeschoolish #stawsandconnectors #buildthings #handsonlearning #teachermom

She’s not going back to school in the traditiona

She’s not going back to school in the traditional sense (we’ve chosen remote learning) but she still “needed” to do some BTS shopping. She bought a few things and paid for them herself with her birthday money.

Our school board pushed the school year start to next week, but we’re seeing and enjoying everyone’s first day of school photos! Wishing everyone a safe and happy return. Be kind to one another. And thank you teachers (my hubby is one) for your patience, passion, and dedication. We love you.

#BTS2020 #teacherappreciation #supportourteachers #ontarioeducation #borntoshop #backtoschooloutfits #specialneeds #inclusiveeducation #specialneedsblogger #diverselearners #specialneedsmom

🌟Welo Giveaway is closed.💫The WINNER is @mic

🌟Welo Giveaway is closed.💫The WINNER is @michellereidel 😀

This gal has had tummy troubles from the get go—reflux, constipation, bloating. A healthy diet tends to keep things in check, but sometimes we get busy or “somebody” gets picky and we find ourselves in a… situation.

@welokids caught my eye on Instagram. Their probiotic bars looked like an easy way to get in some gut healthy pre and probiotics. Regular granola bars are a great on-the-go snack, but THESE bars pack a probiotic gut punch—in a good way!

Welo uses clean ingredients (gluten free and low sugar). And, every probiotic packed product sold supports water, food or education projects in Kikima, Kenya. ❤️

We were sent some bars to try and enjoyed them so much we wanted to share.

Welo also wants to share! They’re giving away a month’s supply of kids bars (6 boxes) so you can try these for yourself.

Go ahead and enter—it’s easy. I know you’re going to love these as much as we do. I can feel it in my gut.

To Enter:⁠

1. Follow me @LisaThornbury
2. Follow @welokids
3. Comment below tagging a friend who you think would like to try Welo bars.
4. Additional entries: add a new comment tagging another friend. Each comment counts as an additional entry.
⁠
Open to Canadian addresses only. Giveaway ends midnight Thursday, September 10th. The winner will be contacted via DM.⁠
⁠
This contest is in no way sponsored by Instagram.

#ad #welobars #welofam #kidfriendly #healthysnack #snacktime #snacksonthego #kidsguthealth #refluxsucks #probiotics #prebiotics #boostimmunity #giveawaycanada #canadacontest #canadianproducts #madeincanada 🇨🇦 @welo.probiotics

Taking in this beauty of a sunset. #dogdaysofsum

Taking in this beauty of a sunset.

#dogdaysofsummer #canineromance #puppylove #adorable #rubyandjakefurever #sitstay #Ontariosummer #paintedsky #isthisfurreal #eveningstrolls 🐾

They said she might not walk, but they didn’t sa

They said she might not walk, but they didn’t say anything about climbing! 🧗‍♀️ 😊

*Video of this daredevil girl in action courtesy of her big brother (who was hiding in their fort).

#aintnomountainhighenough
#whathypotonia? #climber #caughtonvideo #kidsatplay #throwback #2012

We had to say goodbye to this sweet fluff ball ton

We had to say goodbye to this sweet fluff ball tonight. Wait no, not “that” kind of goodbye. Piggy is alive and well! Our guinea pig babysitting gig is over and Piggy went back to her family, happy and fat. Like, Covid 15 chubby. Avery may have over indulged her with the treats...

Fun fact: Did you know Yorkies would “chase, catch, and shake” a guinea pig if given the chance? We didn’t need Google to tell us that. Ruby licking her lips, staring at the cage was evidence enough.

I took this sweet photo of Avery and Piggy and only noticed Ruby afterwards! She’d climbed up onto the TV stand and was eyeing the open cage. Beast. Swipe right to see Ruby cleverly disguised as a lamp. 😆

#kidsandpets #petsteachlove

#intellectualdisabilities #developmentaldisabilities
#disability #advocate #neurodiversity #specialneeds #specialneedsmom #specialneedsblogger
#epilepsy #speechdelay #inclusion #unique
#chromosomedisorder #chromocutie #rare
#3Pdeletionsyndrome #9pduplication @tpollett

The title of this CBC news segment is, “Why some

The title of this CBC news segment is, “Why some parents of kids with special needs are making the ‘heart-breaking’ choice of at-home learning.”

We gave ourselves a deadline to break this news to Avery. But, since the actual news was en route to our house to film a story about our decision, I told her earlier than planned.

Well, it turns out she’s known or at least suspected for awhile. This kid is more observant than I give her credit for.

So, she’s not thrilled, but she’s surprisingly okay. She understands why it’s safer for her at home. And she’s actually quite excited about attending “Thornbury Academy.” Guys, in preparation I’ve been up-selling the heck out of how much fun at home learning will be. (I’ll post about that soon because some of the activities are so easy and fun and totally doable).

I’m glad she’s okay. But in truth, I’m not as okay as she is. I’m feeling overwhelmed at the prospect of homeschooling this year. There will be some kind of distance learning program in place (still haven’t gotten any info on that yet) but ask any parent of a young child or child with learning/attention difficulties and they’ll attest to the 💩 show that is learning independently online—aka without a parent right next to them. And even then, it’s a challenge to keep kids interested and engaged especially when they are hands-on learners like my daughter.

But as frustrated and disappointed as I am, it’s nothing compared to the parents who don’t have the choice to keep their child at home. What are they supposed to do, quit their jobs? Sure, some of their kids are teens, but they can’t be left alone at home. And for so many atypical kids, they need structure, social interaction, and the teaching expertise found at school.

Sending so much support to ALL parents and an extra big hug to our teachers, EAs, and school admin. We know you’re doing your absolute best in this impossible situation. ❤️

Huge thanks to Lorenda Reddekopp, Julia Knope, Emma Waverman and CBC News for telling our story.

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