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You Make Life Better—A Love Letter

Apr 23 2015

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Welcome! You might be here because you love a child with a disability. My daughter has a chromosome deletion/duplication which causes developmental disabilities, and epilepsy. Forever in Mom Genes is where I share stories and information about atypical parenting and family life. I'm glad you're here. Read more.

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Wham Bam Instagram

Who else is trying to find zen, but ends up just f

Who else is trying to find zen, but ends up just feeling annoyed? The struggle is real.⁣
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Avery’s morning mediation says it all. (Her dad interrupted her at the end and he paid the price. LOL!) 🙏🏻 😠 ⁣
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#meditatetheysaid #dontpokethebear #crabbyyogi #quarantiniyogini #mindfulness #intellectualdisabilities #specialneedsfamily

Despite the #WTF? situation we all have going on r

Despite the #WTF? situation we all have going on right now, there are definitely funny moments. Like this morning. Avery’s laptop was chiming with incoming chat requests. At one point she had 3 hangouts and a Kid’s Messenger chat going. She was able to manage this tech, for the most part, independently. In fact, her ability to navigate these platforms exceeds mine! Ahem, #boomerlife. Lol!⁣
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Though she was loving the social interaction and wasn’t truly stressed, she sighed dramatically and put on a show when I asked her how she was doing. Dang, this kid is so much like her melodramatic mother. 😆 #sobusy⁣
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⁣”I’m am so busy. I’m REALLy busy. I really want to go back to my computer.”
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#icreatefakedeadlines #notamultitasker #allthetech #videochat? #butihaventbrushedmyhairindays

Her first “outing” since this all started was

Her first “outing” since this all started was her annual cardiologist appointment today. It made me 😢 that she was so excited to be in the car going somewhere. Anywhere. ⁣
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Granted, she adores her “heart doctor” and loves watching her heart “beep” on the screen, but ugh. She put on a special shirt and did her own ponytail for the occasion. ⁣
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Happy to report her heart is ticking along beautifully. ⁣
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And, huge gratitude to specialist docs like ours who are keeping their offices open and safe (their cleaning protocol was top notch) so that patients like this cutie can still access the important care they need. ❤️ ⁣
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#chromosomedisorder #specialneeds #covid #doctorswhocare #bestillmyheart #isolation #socialdistancing #mitralvalveprolapse #arrythmia

Instagram post 17873672971623630

Instagram post 17873672971623630

Avery’s chromosome disorder includes significant

Avery’s chromosome disorder includes significant short term memory challenges. We never thought she’d be able to memorize song lyrics. ⁣
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So pitch aside, this is seriously amazing!⁣
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Avery’s learning disability requires a LOT of repetition to move new concepts from short term to long term memory. So yes, we’ve listened to this soundtrack more times than I can count. ⁣
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Now she can sing, from memory, nearly the entire Frozen Two soundtrack. ⁣
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She showed off her stuff for grandma this morning. Standing ovation all around. 👏🏻 ⁣
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Once again this kid is proving that anything is possible. ⁣
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#notpitchperfectbutwhocares #sweetestsound #profoundspeechdelay #chromosomedisorder #singsingasong #specialneeds #communication

𝐓𝐨𝐝𝐚𝐲 𝐢𝐬 𝐏𝐮𝐫𝐩𝐥

𝐓𝐨𝐝𝐚𝐲 𝐢𝐬 𝐏𝐮𝐫𝐩𝐥𝐞 𝐃𝐚𝐲. It’s the day we talk about epilepsy, and spread awareness by sharing our personal stories about life with epilepsy⁣⁣
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On March 26th we wear purple to get the conversation going. And sometimes we hula hoop. ;)⁣⁣
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My family’s epilepsy story is on my blog. The link is in my bio. ⁣⁣
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Side note: Avery chose this purple outfit, right down to the purple crocs and purple hula hoop before she even realized it’s #purpleday. 💜 ⁣⁣
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#𝘦𝘱𝘪𝘭𝘦𝘱𝘴𝘺 #𝘴𝘦𝘪𝘻𝘶𝘳𝘦𝘴 #𝘴𝘱𝘦𝘤𝘪𝘢𝘭𝘯𝘦𝘦𝘥𝘴 #𝘸𝘰𝘳𝘭𝘥𝘦𝘱𝘪𝘭𝘦𝘱𝘴𝘺𝘥𝘢𝘺 ⁣
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https://www.foreverinmomgenes.com/2019/03/26/purple-day-an-epilepsy-story/

I’ve been tagged by a number of people to try th

I’ve been tagged by a number of people to try this “fun” push-up challenge and I’ve officially run out of excuses. Also, I’m that level of bored. So, here we go. FYI These aren’t pretty—the shoddy form, nor my sniffling red shnoze up close to the camera (red and drippy from being outside in the cold, not from you-know-what... 😱 🦠)⁣
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Maybe by the end of this⁣
isolation period I’ll improve my form or at the very least, do push-ups without sounding like a warthog. #truefitnessgoals 😂 ⁣
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Can’t wait to get back to @otfnorthoakville ! ⁣
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Keep safe and healthy friends!! 😘 ⁣
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#pushuppressured #outofexcuses #leadingwithmyhead #upforachallenge (sort of)

Avery made our schedule for the day! I was excited

Avery made our schedule for the day! I was excited thinking #2 meant we were going bar hopping. No suck luck. She meant swinging around on her gymnastics bar. 🤷‍♀️ ⁣
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I’m skipping #3 because, why bother? Unless anyone wants to FaceTime later?
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I have only inappropriate/immature comments to make about #s 3 and 4 so I’ll just keep those to myself. Also, I think she called somebody a lush in #6? Surely not her dear mother. Haha. ⁣
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Looks like our evening is wide open. What shall we do? Okay, twist my arm, Netflix it is! :) ⁣
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#socialdistancing #kidsincharge #scheduleshmedule

Our isolation soundtrack has been:⁣ ⁣ 1) @cbcr

Our isolation soundtrack has been:⁣
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1) @cbcradio (in small doses because, ugh.)⁣
2) The Frozen 2 soundtrack on repeat. ⁣
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Last night she put on her snowflake onesie and sang and danced out the movie for us while we sat and watched the whole thing because why not, I mean, it’s not like we’re going anywhere. ;) ⁣
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That performance (swipe right to see a musical highlight. The hair flip cracks me up) clearly wore Avery and Elsa right out. 😴 💤 ⁣
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What have you been listening to? ⁣
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#socialdistancing #isolation #frozen2 #danceitout #bestseatsinthehouse #intotheunknown

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