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You Make Life Better—A Love Letter

Apr 23 2015

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Special Needs, Stories

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Our daughter has a rare chromosome deletion/duplication which causes developmental disabilities and epilepsy. Forever in Mom Genes is where I share stories and information about atypical parenting and family life. I'm glad you're here. Read more.

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The girls are all dolled up (well, one is signific

The girls are all dolled up (well, one is significantly more “dolled” than the other) and partying hard—virtual style!

[Image Description: Girl in a party dress is sitting on a kitchen stool, watching a computer screen. Her doll is in a small wheelchair parked on the counter on the girl’s right.]

#recessoakville #bestcommunityever #danceparty #groupgames #showandtell

#imagedescription #intellectualdisability #developmentaldisability
#disability #neurodiverse #epilepsy 💜 #speechdelay #speechandlanguage #chromosometranslocation
#chromosomedisorder
#3Pdeletionsyndrome #9Pduplication 🇨🇦

Today in social studies they talked about Covid—

Today in social studies they talked about Covid—some science around it and general safety protocol. She wore her favourite mask (her cheer coach made it for her) for the entire class, just because. 😷

#virtualschool #covidkids #pandemiclife #ontariolockdown2021

Amanda Gorman ✨ #braveenoughtoseeit #braveenoug

Amanda Gorman ✨

#braveenoughtoseeit #braveenoughtobeit #auditoryprocessingdisorder #poet #hope

[Image descriptions: carousel of 3 square graphics of white and peach text on a navy background. 1. “Being American is more than a pride we inherit. It's the past we step into and how we repair it.” Below, text, “Amanda Gorman, The Hill We Climb”. On the right, a photo of Amanda wearing a yellow coat at the podium. 2. Text, “About Amanda Gorman.” 3 bullets with text, “1. At 22 years old, Amanda is the youngest inaugural poet in U.S. history, an award-winning writer, and a Harvard graduate. 2. In 2017, she was named the first-ever National Youth Poet Laureate in the United States. 3. She has an auditory processing disorder that makes it difficult to pronounce certain sounds” An image of Amanda touching her face on the left. 3. Quote, “But I don’t look at my disability as a weakness. It’s made me the performer that I am and the storyteller that I strive to be.”- Amanda Gorman]

Regram and 📷 via @diversability

This cracked me up. And seriously, who couldn’t

This cracked me up. And seriously, who couldn’t use a laugh today (or any day at this point)?

My mum sent me this pic of her fave bookmark in action. Avery made it as a gift.

Grandma said it feels wrong having Avery’s sweet face peeping out from her latest gory crime novel. 😆

[Image Description: Front cover of a book called No Bad Deed, with a cut out photo of Avery as a bookmark peeking out of the book.]

#funnygrandmamoments #kidcrafts #homadebookmark

#imagedescription #intellectualdisabilities
#funnypics
#juxtaposition

This is us getting outside as a family. This is

This is us getting outside as a family.

This is us safely taking our masks off for a minute to film a “completely unscripted and totally natural” 😆 birthday message for someone we love.

This is us filming it upside down and embarrassing our kids because tech is getting harder for us old folks. “Mum... MUM!” Hahaha!

I just found this outtake on my phone and it appears Avery is the only one who has any clue what’s going on! 😂

(Yes, we wear our masks when we walk now because... #ontariolockdownpart2)

[Image Description: video of a family—2 adults, 2 teens, unknowing filming a video of themselves upside down.]

#familyouttingsin2021 #freshairtherapy #ImightbeaBoomer #videofail #imagedescription

During the first lockdown here in Ontario I was on

During the first lockdown here in Ontario I was one of those “I’m gonna glow up!” people. I was in for all the fitness challenges and vowed to move my body somehow every day. And then one day I just stopped. Between virtual school and feeling the weight of the world, I barely had the motivation to get dressed every day, let alone exercise.

I started feeling really heavy. Not just in my body, but in my heart. It scared me. So I decided enough was enough. Enough junk food (well, I’m not giving up my popcorn and chocolate chip cookies... I’m not a machine). Enough wine-o-clocks. Enough perimenopause “made me do its.”

I tried moving again, but I just couldn’t get it going. Too tired. Too blah. Too I don’t feel like it.

But then I was invited to try the about-to-launch Orangetheory LIVE classes at home. As a long time OTF ambassador I had early access to these workouts in the training phase. I didn’t think I’d like it but tried a class anyway.

Well, I’ve done SIX classes now and I can honestly say, they are the next best thing to being at the gym sweating with friends.

The workouts are coached LIVE and you’re in a class with other actual human beings!

I wrote a blog post about how it works, what I love about it, and how you can try a free class to see if it’s something you might enjoy too.

There’s a clickable link to the post in my @lisathornbury bio.

Keep safe and keep healthy everyone. 😘 🧡

[Image Description: woman lying on her back on a yoga mat, arms stretched over her head with a small dog lying across her neck.]

#moveyourbody #orangetheoryLIVE #orangetheorycanada #mentalhealthmatters #dogweight #startingfromscratch #mentalload #splatpointsfordays

Though we try to shield our kids from the immense

Though we try to shield our kids from the immense weight of the world right now, they obviously feel it. So I’m even more grateful for “the helpers” who’ve been here from the beginning, keeping kids active and connected. Activities like online yoga and dance and cooking classes, to name a few, have given so many kids, mine included, something to look forward to each week.

Ms Sherri has been teaching this yoga class since the first lockdown. She is patient and kind, but firm. She doesn’t coddle her students because of their disabilities. She challenges them. Avery couldn’t do any of these poses when she first started this class. Now she can flow through each pose like a natural yogi. 🙏🏻

The coming weeks (and months?) are going to be tough. I’m so thankful for these peaceful moments.

[Image Description: video-young girl, hair in a ponytail wearing grey sweatpants and a grey t-shirt is sitting on a purple yoga mat on a wood floor, watching her yoga teacher on a small computer screen.]

#mentalhealthmatters #kidsyoga #stressmanagement #activekids #recessoakville

#imagedescription #intellectualdisability #developmentaldisability
#disability #neurodiverse #epilepsy 💜 #speechdelay #speechandlanguage #chromosometranslocation
#chromosomedisorder
#3Pdeletionsyndrome #9Pduplication 🇨🇦

Cleaned out the fridge freezer today and found thi

Cleaned out the fridge freezer today and found this little ham. :)

[Image Description: Avery peeking out from inside the freezer drawer.]

#imagedescription #iceicebaby #choresinthishouse

Hey look, it’s my son’s first skating lesson b

Hey look, it’s my son’s first skating lesson back in 2007. As you can see, he LOVED it. 😆

His skills didn’t improve much over the years, but that’s okay. Skating just wasn’t his jam. So when his little sister invited him to attend “Sibling’s Day” at her adaptive skating program, I was surprised he said yes.

He cautiously stepped out onto the ice as Avery’s cries of encouragement rang out across the rink. At 15 he towered over the other kids and stood out with his flailing arms and glaring white helmet. But he persisted until eventually he managed to shuffle around the rink on his own.

At the end of the session a volunteer said something to him that still makes us laugh so hard, every time we talk about it.

The full story (and photos of his historical affiliation with white helmets) is the first post of 2021 on the Forever In Mom Genes blog—linked in my @lisathornbury bio. I want to start the year off with a little humour and sweetness. :)

[Image Description: Young boy lying stretched out on the ice in a skating rink, refusing to skate. He’s surrounded by other skaters, including his mom who is standing to his right looking over him.]

#familyskate #adaptiveskate #specialsiblings

#imagedescription #intellectualdisability #developmentaldisability
#disability #neurodiverse #epilepsy 💜 #chromosometranslocation
#chromosomedisorder
#3Pdeletionsyndrome #9Pduplication 🇨🇦

The sea was angry that day... Okay, no it wasn’t

The sea was angry that day...
Okay, no it wasn’t. 😆 But I kept sneaking up behind the kids saying that in a dark ominous voice, as they took in the lake view. I mean, if I can’t amuse myself, what’s the actual point of life?

[Image Description: Avery wearing purple pants, a pink winter coat and matching toque, standing by a wintery grey lake taking a photo on her phone.]

#januarydays #lakeontario #iphonephotographer #kidpics

#imagedescription #intellectualdisability #developmentaldisability
#disability #neurodiverse #epilepsy 💜 #speechdelay #speechandlanguage #chromosometranslocation
#chromosomedisorder
#3Pdeletionsyndrome #9Pduplication 🇨🇦

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