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25 Quotes About Special Needs Parenting
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It’s Important To Protect Your Blog
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A Trip To The Mall That Meant So Much More
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Special Gifts For Special Families
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Dear Parent Of A Newly Diagnosed Child…

25 Quotes About Special Needs Parenting

Parenting a child who has special needs definitely has some unique challenges. Here are a few quotes that never fail to deliver a ray of sunshine on the cloudy days. Enjoy and please feel free to add your favourites in the comments.  1. “Motherhood is about raising and celebrating the child you have, not the child you thought you would have.  It’s about understanding that he is exactly the person he is supposed to be and that, if you’re lucky, he just might be the teacher who turns you into the person you are supposed to be.” ~ Joan Ryan 2.  “One of the great things that any community can do is not teach tolerance, but live tolerance, not talk respect, but live inclusivity.” ~ Michael Pritchard 3.  “The best and most beautiful things in the world cannot be seen or even touched- They must be felt with the heart.” ~ Helen Keller 4.  Don’t focus on what she can’t do. Focus on what she can do. Like a boss. ~ Lisa Thornbury 5.  “Parents of children with special needs create their own world of happiness and believe in things that others cannot yet see.” ~Unknown 6.  “Sometimes the things we[…]

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It’s Important To Protect Your Blog

You might not be a Blogger (not all of us are, it just seems like it) but chances are you’ve journaled, or kept a diary or calendar of milestone moments, or made a photo album to preserve special times. That’s what this blog is for me.  Yes, I write the occasional sponsored post and get paid to heave my “digital social influence” around here and there, but this space isn’t about that. It’s personal. Personal, yet shared publicly across the internet. I started blogging shortly after our daughter was born, ten years ago. I blogged before most people knew what a blog was. I started writing about what life was like as a parent of a child with complicated medical issues and uncharted special needs. I was scared and looking for answers. Writing helped connect me with other parents going through the same thing.  It was also a way for me to keep track of significant milestones—surgeries and illnesses, and firsts, and major accomplishments, and all the feelings. It’s funny, I’ll look back at an old post and be all, “Wait what? She had Scarlett Fever? I totally don’t remember that!”  As the years passed, this blog became a way[…]

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A Trip To The Mall That Meant So Much More

This post isn’t intended to be political, but his electoral “win” makes me worry about my daughter’s future. He who shall not be named doesn’t even try to hide his distain for people with disabilities. It makes me wonder if her life will be more difficult because he’s giving people the message that it’s okay to be intolerant and cruel. However, there’s a kindness army rising up against hatred and discrimination. Kids are being raised to believe in equity and love and compassion. We’re surrounded by it, basking in their warmth and inclusion.  My daughter’s school and neighbourhood friends treat her like the important person she is, worthy of respect and friendship.  Avery’s been asking to go shopping with friends for weeks. She doesn’t actually care about buying anything. It’s about the experience. And her purse. She brings it with her on special outings. Inside you’ll find her lip balm, her pretend debit card, her (bicycle) driver’s license and a handful of coins.  I drove my daughter and her two friends to our local mall to do some Christmas shopping.  I tried to stay in the background to give Avery the feeling of shopping on her own with her friends like[…]

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Special Gifts For Special Families

What do exhausted, stressed out parents really want? What’s an age appropriate gift for a child with autism? Is there an inexpensive toy suitable for a child with fine motor delays? Can certain games help with speech and language development and if so, are they actually fun? All good questions I’ll try to answer below—my merry gift to you this retail festive season. Parents, especially those parenting a child with special needs, rarely take the time to pamper themselves. The holidays are a perfect opportunity for you to gift them something that forces them to take a moment. Yes, I said “force them.” I know this from experience. #stubborn Presents To Pamper Parents:           Special parents can be painfully practical. Since we’re often at a loss for time, practical and useful is always appreciated. Practical Presents for Parents:         Sometimes it’s hard to know what to buy for a child with physical or developmental needs. When in doubt, ask the parents what might be appropriate. Here are a few ideas.  Gifts for Kids With Cognitive, Motor, and/or Speech Delays:               Happy gift giving!  Feel free to message me[…]

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Dear Parent Of A Newly Diagnosed Child…

The early days when you suspect something might be wrong with your child completely suck. Literally—the fear and worry sucks the life out of you to the point where you wonder if you have the strength to actually go on. But the day you hear the words, the actual diagnosis, is the worst day. It’s indescribably (though I’ll try) horrendous.  When we got the phone call that confirmed our daughter has a chromosomal disorder I was dumbstruck. I couldn’t make sense of  what was happening. There was a loud ringing in my ears that made it hard to think. I fled outside and gasped for air. I couldn’t breathe. I eventually came back in and sat quietly on the couch beside my husband and we cried.  A few months later our daughter ended up in hospital which is a despicable story in itself (doctors are wonderful people, but they don’t always see what you see. When a medical professional tells you that it’s all in your head, listen to your gut and do what needs to be done.) This is when further genetic testing revealed the extent of our child’s chromosomal deletion/duplication. The first few weeks with this new knowledge[…]

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