Tag - special needs

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Sticks and Stones
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Shopping With Littles
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The Sweetest Voice
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A Different R-Word Post
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Parenting: A Glory Story

Sticks and Stones

    As the saying going, “Sticks and stones may break our bones, but words can never hurt us.” Really? That life lesson seems a little naive, if not excessively violent. Sticks are for roasting marshmallows. Stones are for skipping over a glassy lake on a hot summer day. Of course getting a stick in the eye is going to hurt and a stone to the skull will probably leave you dizzy and in need of an ice pack. Painful granted, but usually temporary. But words? They have a way of getting under your skin and festering for awhile; stinging and burning like a painful rash. I heard my kids playing upstairs when my son suddenly said to his sister, “Where did you get that from? Did somebody say that to you??” He came down to report that Avery had called him “Dumbo Ears.” She didn’t know what it meant and was obviously only repeating what she had heard. She told us somebody said it to her at school. She couldn’t name who. Avery’s ears do stick out and it’s not the first time she’s been teased about it. The thing is, she has no idea. In the face of[…]

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Shopping With Littles

  Some days I’d rather walk the plank than bring my kids shopping with me. I freely admit to having low mojo days when, if possible, I leave my youngest at home or bring her along, but strap her securely into the shopping cart, with a snack and my iphone. Does she enjoy being confined to the cart? Not for long. Once her snack runs out, she stages a loud and wriggly protest. The iphone apps don’t amuse her for long either. In fact, once when my attention was focussed on label reading, she “misplaced” my phone. I contemplated having customer service put out a loudspeaker call to find it, but instead I retraced our cart tracks and found my phone on a shelf in the bread section. I don’t have to tell you that left me feeling a little crusty. However, bringing along a pint-sized shopping sidekick doesn’t always have to spell disaster.   Here are ten points to consider when shopping with Littles: Give yourself more time than you think you’ll need. Shopping in a hurry with a child in tow is a recipe for frustration. Never attempt to shop when your child is tired or hungry. Never attempt to[…]

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The Sweetest Voice

  No matter how often I hear my children’s voices–and I hear them often since I gave birth to two chatterboxes–I’m never deaf to how sweet they are. Not the words necessarily, but the actual sound; the unique pitch and tone that make them easily identifiable in a crowd. Didn’t I read something about that and penguins? Oh nature, you rock my world. As we sorted through Christmas ornaments last week the kids sang carols, in the way kids do–loud and out of tune. My son sang in a prepubescent high pitched trill that only dogs can hear. While my daughter hummed in tone than can only be described as the lowest on the register. Granted the girl has a cold, but wow. Coupled with her inability to carry a tune we jokingly referred to her as “The Monotone Baritone.” Out of tune and off pitch, it was still music to my ears. Listening to them talk to each other, uttering phrases they’ve clearly heard from me, like mocking birds, makes me smile and reminds me that little ears hear all. *mental note: quit cursing* As I walked my girl through the school parking lot she chattered away, repeating herself,[…]

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A Different R-Word Post

  At a recent group speech therapy session with my daughter I had a run in with the R-Word. But not in the way you might think. Parents watch these classes via closed circuit television from a separate room. It’s usually mothers, but at this session there were two dads in the mix. As the other moms and I watched and listened intently to the class, the two dads chatted about golf and business and other random topics. Instead of hyper-focussing on their kids the entire hour, they were relaxed, enjoying some social time, talking about subjects other than their children. Imagine that.  Whenever I’m in the presence of other moms who also have a child with special needs, the go-to topic of conversation is always our children. “What’s your child’s diagnosis? When did they start walking? Who’s their OT? Seizures? Are they on the spectrum?” etc. etc. etc. Truthfully, it’s kind of exhausting. And then here are these two dads—chatty, laid back, unconcerned.   I eavesdropped as one of the dads relayed this story about his daughter to the other dad . “We’re at this indoor playground and I see Kira push another kid. The kid’s mother runs over and starts[…]

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Parenting: A Glory Story

You ponder the sleepless nights, the childish outbursts (yours AND the kids’), the emotional and financial drain, and the myriad of adjustments you’ve had to make to your life, and you wonder, “Is parenting worth the sacrifice?” The day my daughter was diagnosed with a rare genetic disorder is the day our lives changed forever. We were in the hospital at the time, our tiny girl hooked up to a feeding tube, when the doctor explained what we would be facing in the years to come. Appointments, hospital stays, and numerous therapies loomed. One parent would need to stay home to manage this hectic schedule. It was going to be me. My maternity leave was coming to an end, but I would not be returning to my job. More than a job, my chosen profession and passion. When this reality hit, I sat rocking my baby in my arms, grieving for my old life. A passing nurse peered in at a sobbing mother and soon a social worker arrived to talk to the woman in room 2C who was coming unraveled. It seems selfish looking back at how devastated I was to be losing my career. Was it really a loss[…]

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