1
The Truth About Our Drinking Water and The Urgent State of Our Environment
2
When Your Child With A Disability Is Told, “You Can’t Play With Us!”
3
Three Generations of My Family Fell For Financial Fraud
4
Epilepsy
5
Disabilities Are Not “Special Needs”

The Truth About Our Drinking Water and The Urgent State of Our Environment

Some people idolize musicians and movie stars. And there are those whose hearts beat for environmental crusaders, like David Suzuki. I was invited to listen to Dr. Suzuki speak on World Water Day. I RSVPd yes faster than you can say, “The Nature of Things,” and asked if I could bring along my son who we (half) jokingly refer to as “The Next David Suzuki.” Inspired by the presentation, my son delivered an impassioned speech of his own this week at school on the topic of the urgent need for environmental rehabilitation. His words echoed that of his hero as he explained that the days of merely preserving nature are over. Alarmingly, many scientists believe that 90% of humans will be gone by the year 2100. This horrifying revelation is not science fiction, but based on scientific data related to overpopulation, environmental destruction, and climate change. Suzuki’s concern and underlying frustration was apparent, “Who needs nature in a city? We have Netflix,” he said. His tongue-in-cheek statement refers to our obsession with technology which has created a dangerous state of isolation. Shut off from the world around us, we’re too distracted to comprehend or even notice the gravity of our[…]

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When Your Child With A Disability Is Told, “You Can’t Play With Us!”

  My daughter loves playing at the park at the end of our street. She’d stay for hours if she could. But since she’s a child with a disability, she can’t go to the park by herself like her peers do—they can come and go as they please, but my kiddo has to drag her mother along. “Drag” makes me sound like an unwilling companion, but I’m usually content to supervise. Though some days, admittedly it’s inconvenient. And boring. After a few pumps on the swing and perhaps an (awkward) chin-up or two on the monkey bars, my thoughts quickly turn to, “I need to start dinner” or “I have to return that phone call by 5pm” or “I have to pee” or “I wish I brought more coffee” or “I really, really have to pee.”  But she’s a kid who needs fresh air, and climbing and swinging, and companionship, and your basic childhood fun, so I park myself at the park.  Yesterday was a beautiful spring afternoon so I was happy to spend some time warming the park bench.  Within a few minutes of arriving, the play structure filled with kids from Avery’s school. They quickly organized a game of[…]

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Three Generations of My Family Fell For Financial Fraud

These days it’s unlikely you’ll be pickpocketed in the city square by singing and dancing orphans (think “Oliver Twist”). It’s more likely you’ll be mugged without even leaving your home. Financial fraud can happen anywhere, anytime, to anyone…and you aren’t even compensated for your loss with a jaunty dance number.  I have a few infuriating experiences of financial fraud to share that have been committed against three generations of my family this past year. Kids, seniors, and people with disabilities especially, are ripe for the picking. These shameless thieves don’t discriminate. Hopefully by sharing what happened to us, (along with some helpful tips from TD!) you’ll avoid the sting of scams like these…. and the new ones cropping up every day. Gen Z—Tweens and Teens My teen is uber tech savvy. Without him I wouldn’t know which remote to use to turn on the TV. But, this doesn’t mean he’s immune to fraud. In fact, he was duped into forking over money (ahem, MY money) for an app. He thought he was paying a one-time-only fee. It turns out the payment was charged to my credit card automatically every month. When I finally noticed and figured out what the charge[…]

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Epilepsy

Sometimes I forget our daughter has Epilepsy. But only for a second. We’re incredibly lucky her seizures are suppressed by medications, but it’s impossible to forget the traumatic years when they were not.  Avery’s first major seizure happened when she was three and a half. I shared the story of what happened in every painful detail. I’m sharing the link again HERE. Even after all this time, I find it difficult to read. Even though it was nearly eight years ago now, those seizures just before Avery turned five were brutal.  Every year since she has an EEG to assess the seizure activity in her brain. And every year while we wait for the results we hope for the news that there is no seizure activity or that the electrical abnormalities remain unchanged, in equal measure.  It may sound odd to hope for no improvement, but if her brain activity appears normal the neurologist will take her off anticonvulsants. And this could mean more horrifying seizures.  When neurons discharge inappropriately they cause abnormal electrical impulses in the brain. This results in seizure activity which can lead to abnormal motor activity or convulsions, and loss of consciousness, and if not controlled as soon[…]

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Disabilities Are Not “Special Needs”

It’s taken a decade of research into genetics and specific diseases and disabilities for me to gain even a fraction of understanding of my daughter’s syndrome. I still have no idea what I’m doing half the time. And I make plenty of mistakes.  Case in point—until recently I didn’t even realize that the label “special needs” was outdated and unacceptable. I’m immersed in this community, yet I was unaware. And if missed this, maybe you did too? I’m not easily offended. I curse, I make gross jokes. I try not to take what people say too seriously and I try to cut people some slack when they say the wrong thing. We all slip up. Words don’t tell the whole story. Our actions and intentions define who we are.  But, when we are told point-blank that something is offensive, we should pay attention. Isn’t it our responsibility as compassionate citizens to do no harm whenever possible? And seriously, updating our vocabulary costs us nothing. Let’s take the r-word for example. I’ve written about it quite a bit over the years. The word itself is harmless. It means late or delayed. When used appropriately, it should cause no harm. But it does.[…]

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