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Archive - April 23, 2015

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You Make Life Better—A Love Letter

You Make Life Better—A Love Letter

Apr 23 2015

Browse archives for April 23, 2015

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Special Needs, Stories

Tagged with gratitude, love letter, special needs

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Welcome! You might be here because you love a child with a disability. My daughter has a chromosome deletion/duplication which causes developmental disabilities, and epilepsy. Forever in Mom Genes is where I share stories and information about atypical parenting and family life. I'm glad you're here. Read more.

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Happy Canada Day! ❤️ 🇨🇦

Happy Canada Day! ❤️ 🇨🇦

My husband is an avid golfer. Let’s just say, I’m not a fan. (Clubs may have been thrown last time I hit the fairway.). However, it seems my golfer guy has found a partner! Avery loves hitting the range and putting and all the golfy things. 💕 ⁣
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I love that they have this special activity to share. It also gets me off the hook! :) ⁣
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**Swipe right to see Avery nearly take out her granddad with a sideways drive. “Oh. Sorry about that granddad.” 🤣
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#fore #golfdays #daddydaughter #iprefersaladgreens

“By being yourself you put something wonderful i

“By being yourself you put something wonderful in the world that was not there before.” – Edwin Elliott⁣
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What makes you unique is what makes you, you. And boy oh boy, do we ever love you. ⁣💜 ⁣
📷 @peadypics ⁣
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#embracedifferences #diversity #inclusion #bekind #loveislove #unique #specialneeds #disabilitycommunity #specialneedsmom

Congrats to all the 2020 grads! This may not be th

Congrats to all the 2020 grads! This may not be the ideal situation, but man are we ever grateful for the enthusiasm and creativity of our teachers and staff. You have worked so hard to make this unusual graduation so special. Thank you for everything! 🎉 🙏🏻 💕 ⁣
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#offtohighschool #graduation #covid #schooldays #teachersrock

When we got Avery’s chromosome disorder diagnosi

When we got Avery’s chromosome disorder diagnosis we wanted specifics and a long range prognosis. The doctor didn’t have either. Instead Avery’s potential was based on the limited genetic data available at the time. ⁣⁣Thirteen years ago there wasn’t much to go on. We were told to prepare for some pretty significant challenges. I don’t blame doctors for painting a bleak picture. Avery’s development was based on what other subjects had reported in the literature. ⁣⁣
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We were told to expect that Avery wouldn’t be able to walk without assistive devices. But they didn’t say anything about skipping. :) ⁣⁣
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#chromosomedisorder ⁣⁣
#3Pdeletionsyndrome #9Pduplication ⁣⁣
#intellectualdisabilities #developmentaldisabilities⁣⁣
#disability #advocate #specialneeds #specialneedsmom #epilepsy #speechdelay #inclusion

My husband thinks he’s hysterical. The kids and

Happy Caturday! ⁣😸 ⁣ ⁣ ⁣ #kidsandcats #

Happy Caturday! ⁣😸
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#kidsandcats #bffs #catsmeow #catsofinstagram #Kevinstagram #tabbycat #flabbycat

One thing I’ve come to realize over the past few

One thing I’ve come to realize over the past few weeks is that I don’t know, what I don’t know. So I’m reading and watching and listening. And I’m asking questions (some embarrassingly naive) and learning so much about what I either knew and had wrong, or didn’t know about at all. ⁣
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Thank you to my gracious, patient, loving friends (online and IRL) for generously sharing their experiences, insights, knowledge and resources. ⁣
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#systemicracism #blacklivesmatter

When you ascribe to the “let them be bored and f

When you ascribe to the “let them be bored and figure out how to entertain themselves” method of parenting, it’s only a matter of time before they become ring master of their own dog circus. 🤡 ⁣
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#parenting #covid #homeschooling #freerangekids ⁣
#intellectualdisabilities #developmentaldisabilities⁣
#disability #advocate #specialneeds #specialneedsmom⁣
#epilepsy #speechdelay #inclusion⁣
#chromosomedisorder ⁣
#3Pdeletionsyndrome #9Pduplication

Stopping to smell the peonies. ⁣ ⁣ ⁣ ⁣ #sw

Stopping to smell the peonies. ⁣
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#sweetsundays #familybubble #grandparentsgarden #floral #peonies

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