Archive - June 2014

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Never Say Never—A Story About Very Special Athletes
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Are You Resilient?
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When A Pet Dies
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Canada’s largest disability exhibition – People in Motion
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Rare Chromosome Disorder Awareness Week

Never Say Never—A Story About Very Special Athletes

  We were told that it wasn’t likely our daughter would ever walk on her own without some kind of assistance. Doctors made this assumption based on what is known about her faulty DNA. Considering the significant chunk of genetic material missing from Chromosome 3 (3P Deletion Syndrome), this was a fair assumption. But you know what they say when we assume… “it makes an ASS out of U and ME.” So we try to never assume—and more importantly, to never say never.  This spring Avery attended the 27th annual Special Athletes Track & Field Meet in our school district. There were 280 athletes in attendance, plus teachers, support workers and teary eyed parents. Each athlete was allowed to bring along one ambassador to help them. Avery chose her eleven year old brother. Sebastian wanted to be there, but he was scheduled to represent his school at his own track meet. In the end, and on his own, he decided to accompany his sister. He said he wanted to cheer her on. And boy did he ever. We are so grateful to the mother who started this special event 27 years ago and to all of the volunteers who make[…]

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Are You Resilient?

  My mother often cuts out stories for me from the newspaper or sends interesting online snippets from her iPad.  I don’t always have time to read them. What? I’m busy (I could sense my mum’s eyes rolling the second I typed the B word).I read this particular article right away. Not only is it full of truth and inspiration, it also describes my SUPERWOMAN aunt Jan perfectly. If you looked up resilient in the dictionary, you would see her smiling and determined face looking back at you square in the eye. After reading the article I wondered, am I resilient: hardy, airy, easy-going, quick to snap back, flexible? Some days I know I am. Other days I know I absolutely am not. Here are the main points from the article in case you don’t have someone sending you interesting articles to read on the daily like this one called— The 5 Characteristics of Incredibly Resilient People by Smita Malhotra. Read the full story here. Resilient people… 1) practice mindfulness  I try to be mindful, but then I get distracted by all of the other pressing things swirling around my mind. Mindfulness is hard. 2) don’t compare themselves to others I[…]

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When A Pet Dies

Pets die. It’s inevitable, but when it actually happens, it’s heart wrenching. Especially when you have kids.   We have two dogs who are getting on in years and we accept that they won’t be with us forever. But our skinny pig Ernie was only ten months old, so when he died suddenly it was a shock. Though he was merely a guinea pig to some, to us he was a beloved pet and sweet friend to my kids Sebastian and Avery. For reasons unknown, Ernie had a massive seizure and died. My daughter has Epilepsy so I’ve done my fair share of research into seizures. But never did I imagine I’d be Googling “what to do when your guinea pig has a seizure.” I was sitting next to his cage when it happened. He suddenly began convulsing in his cage, and was paralyzed and helpless in a matter of minutes. I knew when I picked held him, his head tilted and nuzzled lifelessly into my neck, that he was leaving us. That’s the hardest part about having a pet—they are completely dependent on us for their survival. So when they get sick or hurt or god forbid die, it’s[…]

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Canada’s largest disability exhibition – People in Motion

  *Post has been updated with info for the 2015 exhibition. This FREE to the public event is designed to educate on the latest and most innovative products and services—from mobility aids to adapted vehicles, rehabilitation services, home healthcare products and more, everything is intended to help enhance independence. We like independence. 🙂 This is a perfect opportunity for us to discover unique services and participate in some fantastic sporting demos and have a chance to meet experts and ask questions. Highlights include:  A Para Archery Range: Find your inner Robin Hood with the Ontario Association of Archers and pick up a bow and give archery a try. Blind Fishing: Join fisherman Laurence Gunther, legally blind since age eight, talk about how he earned his Masters in Environmental Studies and how he created the world’s first fishing boat capable of being operated by the blind.   Appearing Live: Listen to Canadian singer-songwriter Justin Hines perform songs from his album “How We Fly.”   Seminar Stage: Learn at educational seminars featuring speakers from a wide variety of organizations like these.  View full list of 2015 Exhibitors Here Show Dates/Times: May 29-30, 2015 (10 AM to 5 PM) Venue: Exhibition Place, Queen[…]

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Rare Chromosome Disorder Awareness Week

  To say we’re “celebrating” Rare Chromosome Disorder Awareness Week is a bit of a misnomer. However, we are marking it and we are grateful that the first ever RCDAW starts today. Thankfully we found a support in an organization called Chromosome Disorder Outreach  early on. Through their research, education, and efforts to connect families who face similar struggles, we feel much less alone in this unique journey. Individually, chromosome changes like the ones that affect our daughter are still considered rare. But we are now learning that these disorders actually may not be as rare as once believed…

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