Category: Special Needs
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Clinodactyly
Our son is fully aware that his little sister is different. He knows about her chromosomal disorder and her cognitive and medical challenges. He understands the implications of the R-Word and he’s aware of the range of physical disabilities that exist for so many people. He has been aptly schooled. We’ve shared Avery’s diagnosis and prognosis…
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Mum, Mum, Mum, Mum, Mum, Mummy, Ma, Mum…
Like a blonde, curly haired broken record, my daughter gets stuck on repeat. Actually, she must repeat in order to learn. Genetic testing has revealed that our child is missing specific genes linked as the cause of mental delays specifically related to memory. Children learn by mimicking and remembering. It takes Avery much longer to…
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I Don’t Care If You Stare
Pretending to be a puppy at the pet food store… The moment I stopped caring so much about how strangers perceive my child, is the moment I was set free. I can’t pinpoint when it happened exactly, but somewhere along the road from resentment to contentment, I rediscovered the joy of parenting my unique child. …
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Online Medical Research: A Blessing And A Curse
With so much medical and genetics related information accessible online, many parents regularly turn to the internet to research everything. If you’re the parent of a child with special needs or specific medical issues, it’s crucial to understand as much as possible about current challenges, potential problems, and helpful therapies. This knowledge is…
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Planning For Your Special Needs Child’s Future
I’m a compulsive planner which means I need like to know what’s going to happen next; and if I can control what that is, even better. FYI — I know what we’re having for dinner every night for the next two months. When it comes to my children, I have to remind myself to stop obsessively looking forward. However, there are…