Tag - special needs parent

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Tears For Cheers—But Not The Happy Kind
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PTSD—Always There Under The Surface

Tears For Cheers—But Not The Happy Kind

My daughter and her special abilities cheerleading team competed performed at our Provincial Cheer Championships this weekend. The kids loved it and they beamed under the spotlight. It was a beautiful moment in time. It was the kind of acceptance and inclusion we parents of kids with disabilities long for. So why did I leave feeling completely gutted?  The coaches and volunteers who have helped shape this team into a world class cheering force, are amazing. I don’t even have the words to express my admiration. Ironic, since I’m a writer and everything. They believe in these incredible kids and are giving them the opportunity to feel the power and pleasure of working together as a team. This is to say, it’s all good. I am very grateful. But, I’m still allowed to feel the feelings, right? And I’m not talking about the rosy ones. These are dark little suckers.  There were tears this weekend. Yes, some were the proverbial “happy tears” that leak from parental pupils that just can’t contain all the pride. But some were ugly. The ones you hide by pretending to blow your nose or try stop from spilling by holding your breath or swallowing hard[…]

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PTSD—Always There Under The Surface

Adrenaline is nature’s way of keeping us safe in the face of danger. It serves a purpose, but when a traumatic experience causes you to live in a constant state of fight or flight it can wreak havoc on your life. PTSD can wreck you if you let it.  We’ve all experienced that jolt of muscle quivering energy that floods our bodies during scary or stressful situations. Like when the car in front of us stops unexpectedly causing us to slam the brakes. Or when a glass slips from our hands, but we catch it before it smashes. Our hearts race, but we quickly recover and move on.  But sometimes the situation is painfully serious and the recovery time is substantial. Like when your child has a medical emergency—a near fatal seizure or maybe she chokes and stops breathing. I can’t begin to describe how frightening that is. We’ve been in this horrible place a few times over the past decade. We’ve watched helplessly as our youngest lay unconscious, or unable to take a breath.   Our daughter Avery’s near fatal seizures have rendered her lifeless in my arms. I’ve seen her lips turn blue. We’ve watched paramedics bring her back to[…]

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