Tag - disability

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Pets Are Family
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When Your Child Chokes
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Planning For Your Special Needs Child’s Future
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A Unique Teacher Imparts Real Life Lessons
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Sticks and Stones

Pets Are Family

  People say we’re nuts for having so many pets. Three isn’t “so many” if you ask me, but I’m not one to split hairs—even the ones stuck to my black pants. Is life easier without a small herd of animals to take care of? Sure. Is it as rewarding? Not for us. When our daughter was about two and a half and still not walking, one of her physical therapists suggested we find something highly motivating to her to get Avery up off the floor and walking. Avery has always been obsessed with dogs. THIS would be her motivation. My sister-in-law has her own veterinary practice and she found the perfect dog for us—a mutt, part chihuahua, part terrier and part teeny-tiny wolf. He was about three years old, housebroken, quiet, not too big, and a RESCUE DOG in need of a loving home. We would be that home.   Within three months of adopting Roger, our girl was walking; then running after her canine companion. A few years later we adopted a second dog, Maya. We even hosted a dog wedding. No seriously, you can witness the Bow Wow Vows here. It can take people a lifetime to[…]

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When Your Child Chokes

  Not all parents of children who have a disability of some kind obsess. Admittedly, I do. I struggle to tame the worries that invade my thoughts and I tend to hover over my daughter. (Think helicopter blades whirling furiously over head, bubble wrap dispenser on the ready.) My child has global development delays, speech and gross motor issues, and seizures. Despite her diagnosis she has made incredible progress. For a child who doctors said may never walk or talk, she is doing both — in your face, science. Our girl is no longer a baby. She is active and bold and curious. To deny her independence and the chance to explore would be cruel, so I hold my breath and let her go. Up the stairs by herself; higher on the swings; in the pool, close by, but liberated from her water wings. As it is for any child, loosening their reins allows them to reach further. So despite my racing heart, I’m trying to give her space to grow. My other child, Avery’s big brother, laughs when I remind him to chew his food. To him, grapes are juicy mouthfuls. To me they are ominous orbs of imminent choking. I’m not completely insane though — I stopped cutting[…]

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Planning For Your Special Needs Child’s Future

I’m a compulsive planner which means I need like to know what’s going to happen next; and if I can control what that is, even better. FYI — I know what we’re having for dinner every night for the next two months. When it comes to my children, I have to remind myself to stop obsessively looking forward. However, there are some things that really must be arranged in advance when you have a child with a disability.  Though I hope to be around for a long time to care for my family, even I, the master of control, can’t control that. So as unpleasant as it seems, we recently updated our wills and named our children’s guardians and Powers of Attorney.   We also created a document listing all accounts, assets, debts, passwords, and any other crucial information family members would need in the case of, you know, our demise.   We set up an RESP for our son. He’ll need it to help with law and medical school. After that, he’s on his own. I’m sure his astronaut salary and Pulitzer prize money will be enough to get by on. (What? I tend to dream big.)  So with those details in place, I can relax and just enjoy my kids,[…]

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A Unique Teacher Imparts Real Life Lessons

I started watching this video through “teacher” eyes; interested in what makes this particular educator unique. I didn’t expect to be so incredibly moved by his experience as a parent.  I wonder if his parenting a child who has a disABILITY makes him a more compassionate and intuitive teacher? I can’t see how it wouldn’t. It’s clear he has been able to incorporate his personal struggles and strengths into his teaching. He generously shares his positive attitude and can-do outlook with the world and his students are benefitting.  Sometimes even the most seemingly ordinary people live the most extraordinary lives. And they are often the people who teach us the most important lessons about life.  Watch this. It’s truly wonderful. 

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Sticks and Stones

    As the saying going, “Sticks and stones may break our bones, but words can never hurt us.” Really? That life lesson seems a little naive, if not excessively violent. Sticks are for roasting marshmallows. Stones are for skipping over a glassy lake on a hot summer day. Of course getting a stick in the eye is going to hurt and a stone to the skull will probably leave you dizzy and in need of an ice pack. Painful granted, but usually temporary. But words? They have a way of getting under your skin and festering for awhile; stinging and burning like a painful rash. I heard my kids playing upstairs when my son suddenly said to his sister, “Where did you get that from? Did somebody say that to you??” He came down to report that Avery had called him “Dumbo Ears.” She didn’t know what it meant and was obviously only repeating what she had heard. She told us somebody said it to her at school. She couldn’t name who. Avery’s ears do stick out and it’s not the first time she’s been teased about it. The thing is, she has no idea. In the face of[…]

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