Tag - HGH

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Decisions—Growing Pains Update
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Growing Pains

Decisions—Growing Pains Update

When I wrote about recent Growing Pains with our daughter so many of you jumped in to offer support, compassion and some kick ass advice. We all know it takes a village to raise a child, but it takes that same village to support a family who’s spinning in circles, not knowing what to do. Thank you village. Sincerely. We’ve stopped spinning. For now at least. We met with a wonderful pediatric endocrinologist yesterday at Sick Kids. I can’t say often enough how lucky we are to live just a short drive away from this world class children’s hospital. With the support of a wonderful doctor and her team, we have decided to put off Avery’s impending human growth hormone treatment for at least six months. Pheeeeeee-ew. We learned the injections are nothing to fear. After the learning curve, they will become just another part of our daily routine. I can live with this. It’s the fear of the C word that has temporarily stopped us in our tracks. Avery’s pituitary does not produce enough HGH. The answer to why is hidden somewhere deep within her unique genetic make-up. But also lurking there in the shadows are other unthinkable possibilities.[…]

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Growing Pains

When I say our daughter is our little girl, I mean to say that she’s our little girl and she’s a little girl. She’s been following her own curve on the growth chart since she was born—way down at the bottom, around the 3rd percentile. Sometimes lower. Her adult height has been predicted to be around the 5ft mark give or take. Our main concern when she was younger was always her weight. A bony baby who refuses to nurse or eat even the tiniest meal is not for the faint of heart. We worked extremely hard to put weight on her (it’s still a struggle most days), only narrowly avoiding G-tube surgery. There was no secret bullet, only patience, persistence and possibly a deal with the devil. With our focus on all things high fat, nutrition packed, appropriate texture, etc. we didn’t worry much about her height. Until recently. We were sent for a consultation with a pediatric endocrinologist upon the recommendation of our pediatric neurologist who had concerns about her overall growth. After a bone age test—a simple x-ray of the growth plate in one hand—we learned that Avery’s growth measures at age four (she is eight). She[…]

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