Category - disability

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Paging Dr. McDreamy—Ear Tube Surgery
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I’m Lucky To Be A Stay At Home Mom

Paging Dr. McDreamy—Ear Tube Surgery

Our daughter had ear tube surgery today. Not a major procedure, but to me it may as well have been a brain transplant. Avery is 33 months old and isn’t talking. She has underlying genetic issues that are likely the cause, but we also know she has fluid in her ears. A whole lot of gunky fluid. What is “Glue Ear?” She failed hearing test after hearing test. They finally put a number on it – 40% hearing loss which is like listening while pressing both hands tightly against your ears. We decided to go ahead with the ear tube insertion. It would help Avery hear and hopefully speak clearly. We hesitated only because her genetic condition also includes cardiac issues which can make anaesthesia more risky. We arrived at the hospital at 7 am and took a seat in the surgical waiting area with the other gowned patients. Everyone wore the same expression of exhaustion, fear and nervous anxiety. I tried not to touch anything and probably used the community hand-sanitizer more often than would be considered NOT INSANE. While we went through the pre-surgery protocol, I kissed Avery’s little blond head a hundred times. We sat and watched[…]

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I’m Lucky To Be A Stay At Home Mom

If you’d told me that one day I’d leave my job to be a stay at home mom, I never would have believed it. I went to school to be a teacher dammit. I’ve always wanted to be a teacher. As if I’d give that up… Of course I love my kids and I want to be with them. But not like, all the time. I’d always planned to parent AND work—in perfect balance. Because that’s totally doable, right? I thoroughly enjoyed mat leaves with both my babies, but knowing I’d soon be back at work made it easier to enjoy every moment. The light at the end of the tunnel shone bright. Mid-way through my mat leave with my second child, daycare was set up, schedules were organized and I was ready to go back to the classroom I loved, to a job I was really good at, blissfully unaware that things were about to change. At 8 months, our daughter became very ill and was hospitalized. Avery was diagnosed with a rare (as in one-of-a-kind-where-in-the-hell-did-this-come-from-holy-shit) genetic condition. Doctors didn’t have much information so we had no idea what to expect. The geneticist painted a grim picture, tossing out gems like,[…]

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