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Wordless Wednesday — Burr It’s Getting Cold Outside

Nov 28 2012

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Tagged with a burr in her hair, just for fun, Life, photo, Wordless Wednesday

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Our daughter has a rare chromosome deletion/duplication which causes developmental disabilities and epilepsy. Forever in Mom Genes is where I share stories and information about atypical parenting and family life. I'm glad you're here. Read more.

Have You Read These?

A Peek Inside Her Head
Is Blogging Dead?
Goodbyes Are Never Easy
Super Bowls & Slow Cookers
Wordless Wednesday – Avery’s Blue Period
Avery’s Moment In The Spotlight

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My daughter learns differently. She requires more

My daughter learns differently. She requires more guidance and supervision than many of her peers. I'm happy to help, but I'm also happy to take advantage of digital learning tools that help make learning independently more accessible (and more fun).

1 in 5 Canadian students have a learning disability—Dyslexia is the most common affecting Canadian students.

Canadian students, parents and educators can access Microsoft’s free Dyslexia Decoded series of webinars and access free tools and resources like Immersive Reader that support students with learning differences.

Immersive Reader is our favourite free tool that uses proven techniques to improve reading for people regardless of their age or ability. Try it out for yourself.

The link is in my bio.
@microsoftcanada

#Sponsored #DyslexiaAwarenessMonth #learningdifferently #accessibilitytools #immersivereader #microsoftlearningtools #accessibilityinpractice #freetools #virtualschool

Know what this dark dank day needs? A tiny furmaid

Know what this dark dank day needs? A tiny furmaid. 😊

📷 Avery

#furfamily #kidsandpets #petsagram #furmaid #yorkielife

She danced like nobody was watching. Except I was.

She danced like nobody was watching. Except I was. I heard her in the basement blasting @itsjojosiwa and dancing her heart out. When she noticed me filming her, she was uncharacteristically embarrassed. This self-conscious, self awareness is new. It’s yet another inchstone in the miles of developmental milestones we didn’t know if she’d ever reach.

If you’re new to the “disability parent” journey, I’m here to say that you never know what will be possible. Your child’s diagnosis and prognosis isn’t set in stone. We were told our child wouldn’t walk or talk but yet here she is, dancing and singing.

The full story and sassy dance moves 😆 are in my latest blog post linked in my bio @lisathornbury.

#intellectualdisabilities #developmentaldisabilities
#disability #advocate #inclusion #neurodiversity #specialneeds #specialneedskids #specialneedsmom #momlife #specialneedsblogger
#epilepsy #speechdelay
#chromosomedisorder #chromocutie #rare #unique
#3Pdeletionsyndrome #9Pduplication
#differentnotless

Hey, look who makes a cameo! 🌟 @mapleleaffood

Hey, look who makes a cameo! 🌟

@mapleleaffoods: “Whatever your family has gone back to this fall, remember to enjoy the ride! With all its ups and downs, twists and turns, at least we’re on this rollercoaster together.”

#eyespysomebodycute #virtualschool #remotelearning #backtoschool #fall2020 #enjoytheride

This photo is from the first week of Virtual Schoo

This photo is from the first week of Virtual School. She was so excited and engaged.

Today marks exactly one month of remote learning. There’s no photo because she’s not at her desk this morning. Five minutes into class she muted her microphone and moved out of camera view. She told me she just couldn’t do it today. “Can I please go lie down?” she asked. She looked deflated and exhausted.

Virtual School has been fantastic. The teachers are passionate, dedicated and incredibly creative. As a teacher myself, I’m blown away by their energy.

But learning online, along with doing most of her extra curriculars virtually, is a lot. And it’s okay to take a break. So, she’ll finish her nap, we’ll take a walk in the fresh air, go to an appointment, grocery shop, and maybe bake a lemon loaf. And then we’ll start fresh on Monday.

#virtualschool #schoollife #homeschooling #remotelearning2020 #recharge #mentalhealthbreak #rollwithit #intellectualdisabilities

My face says, “I can’t wait to spend my life w

My face says, “I can’t wait to spend my life with him.” His face is more, “What have I done?!” 😆 ⁣
⁣
Advice to the young folks, get married at the beginning of a decade. It makes the math super easy. :) ⁣
⁣
Another tip, choose someone you really like. Love is important, but 𝘭𝘪𝘬𝘪𝘯𝘨 your partner and admiring their character will help you deal with the hard stuff. And there will be hard stuff. ⁣
⁣
Looking through our wedding photos this morning was both happy and sad. Happy because it was a beautiful fall day filled with so much silly fun. But it was also painful to see all the faces who are no longer here. Taken from us too soon. ⁣
⁣
I haven’t flipped through our wedding album for awhile. The spine is broken, pages have fallen out, and photos have shifted all over the place.Thankfully our marriage is in better shape than our album. LOL!⁣
⁣
Happy Silver anniversary Mr. T. ♥️
*edited to add: oops! It’s not our silver anniversary! That’s just the colour of my roots. ;) We’re 20 years, not 25. I got my anniversary gifts wrong!

Not your usual (or remotely flattering) “Happy T

Not your usual (or remotely flattering) “Happy Thanksgiving” photo. 😆 But I’m sharing anyway to say how grateful I am for this family.

For the girl who because I was stuck in bed this morning icing an old lady neck injury, built this structure and placed it on my chest to make me feel better.

For the man who brought me breakfast in bed and massaged icy heat gel into my bulging disc.

And for the boy child who attempted a ponytail so the massage wand wouldn’t get tangled in my hair. You guys, if you want to laugh really hard, ask your teenage son to play hairdresser. It’s hysterical.

I’ve since hauled my rickety arse out of bed and we’re headed out for a family fall hike.

I feel grateful and thankful. (And...in need of a good stretch!)

Happy Thanksgiving everyone! 🧡 💚 💛 ❤️

#familyfirst #gratitudeattitude #thankfulforyou #canadianthanksgiving #ohmyneckandmyback #turkeyneck

OMG Virtual School is much busier than I expected.

OMG Virtual School is much busier than I expected. But it’s what we signed up for.

I love the freedom of creating our own schedule, enjoying a fall day at the park for “recess”, making silly morning announcements, and just being fully immersed in her daily life. It’s a unique opportunity and I feel grateful.

But truthfully, I also feel way behind in my personal and work life and a little crusty some days. Like today.

I was rushing around getting her set up for her morning meeting online. Leaning over her shoulder to adjust her camera settings, she suddenly pushed back in her chair to go pet her cat. She rolled over my bare foot with her chair and I yelped. I stormed out of the office and retreated to my room to take a minute. When I returned I found this note outside my door.

“I’m relly sorry. 💜 Love Avery.”

It made me melt and also burst out laughing. This kid really knows how to diffuse a situation.

Why am I sharing this? Well, because it’s sweet. But mostly to address the fact that homeschooling is DEMANDING.

We’re thankful to be able to learn virtually, but admittedly it’s incredibly time consuming and frustrating at times. I just wanted to remind my fellow homeschoolers (and myself!) that it’s okay to feel annoyed or overwhelmed or to even grieve a little over the loss of life as we knew it.

We’re not perfect. And it’s okay.

FYI My crushed toe is fine. I may have been a teeny bit dramatic. Shocker. 😆

“Do not go where the path may lead; go instead w

“Do not go where the path may lead; go instead where there is no path and leave a trail.” 𝘙𝘢𝘭𝘱𝘩 𝘞𝘢𝘭𝘥𝘰 𝘌𝘮𝘦𝘳𝘴𝘰𝘯 💜

As if the gift of sport, confidence, and friendshi

As if the gift of sport, confidence, and friendship wasn’t enough, her cheer coach sewed her this mask! You can see Avery’s grateful grin through her mask.

She’s so excited to take this “magic mask” for a spin next practise. Thank you Coach Wendy! 💛

If you’d like to get your hands on one of these beauties, check out @wensen2’s Instagram feed. She’s custom making these masks and donating the proceeds to #haltonwomensplace.

#wearthemask #custommade #sewgood #cheerleading #cheercanada #inclusivesports #coacheswhocare #volunteersrock
#intellectualdisabilities #specialneeds #kidswithdisabilities

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