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Wordless Wednesday — Burr It’s Getting Cold Outside

Nov 28 2012

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Wordless Wednesday–Overwhelmed

Wordless Wednesday – Avery’s Blue Period

Me and My Shadow — (Mostly) Wordless Wednesday

Wordless Wednesday – Friends

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Welcome! You might be here because you love a child with a disability. My daughter has a chromosome deletion/duplication which causes developmental disabilities, and epilepsy. Forever in Mom Genes is where I share stories and information about atypical parenting and family life. I'm glad you're here. Read more.

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Avery read every single message you posted for her

Avery read every single message you posted for her birthday. This video is a shout out to you kind and thoughtful peeps! 14 was extra special because of you. 💕

“Thanks everyone. You are nice. I had a good birthday. It rained but I’m having my backyard movie party tonight. We’re having popcorn and candy and watching Trolls. Love, Avery”

#gratitude #iloveyou #covidbirthday #guineapiggy

She walked into our room bright and early this mor

She walked into our room bright and early this morning and announced, “Welp, I’m fourteen now.” 😆

She certainly is fourteen and every bit a happy, sassy, determined, fun-loving teen.

Fourteen years of gratitude for having the pleasure of knowing her. Pure sunshine this one.

#birthdaywishes #waffles #covidbirthday #14 💕

Oh sweet girl, I do love you to the moon and back.

Oh sweet girl, I do love you to the moon and back. And anyone who doesn’t appreciate you for who you are, doesn’t deserve a second of your attention.

To the two teenage girls who whispered and laughed when she tried to say hello to you outside the Starbucks tonight, you don’t deserve to know her.

She didn’t understand why you turned away from her. She didn’t notice you making fun of her. But I noticed.

I didn’t approach you to scold you. I wouldn’t draw attention to your bad behaviour in front of my child.

With all the anti-bullying education, I’m shocked that you would treat another person this way, and in front of her mother no less.

Sometimes I think we’ve come so far. But in moments like these, I’m reminded that not everyone is inclusive. Not everyone sees different as beautiful. And not everyone leads with kindness. We still have work to do. 💜

I’m grateful to all the supportive, loving, “I

I’m grateful to all the supportive, loving, “I gotchu” women in my life. Where would I be without you?

And a special shout out goes to my fellow “special” mamas—those who came before me and made me believe things would be okay. And those walking beside me now, who graciously allow me to lean on them when the road feels hard.

Group hug ladies! 💜

Avery’s secret fort. The eff you finger wasn’t

Avery’s secret fort. The eff you finger wasn’t intentional. I don’t think. 😆

Having a social media mom can be annoying—always

Having a social media mom can be annoying—always with the photo op. But there are perks, like toy previews.

Avery and I look forward to these outings. We get to attend events and test the newest toys on the market.

But thanks to Covid, this season’s toy preview wasn’t in the cards. Until suddenly it was. @thetoyinsider hosted their annual event online tonight. I didn’t know what to expect and to be honest, I considered skipping it. I’m glad I didn’t.

Avery and I visited the virtual booths together and it was so well done. Seriously, how does one code something like this with so many interactive parts? I can barely log into my online banking account.

The highlight for Avery was the Blip booth because... @ninjakidztv. Avery is obsessed. If you’re not familiar with this You Tube sensation, it’s 4 siblings who set up challenges for each other. I don’t get the appeal, but she idolizes them and begs me to take her to their house one day so she can play with them. Aw. And now, she’s constantly setting up challenges for our family, and playing quiz games like, “How well do you know Avery?” (super cute) totally modelled after the show.

Tonight we learned they’re coming out with their own line of toys so... guess what’ll be at the top of this girl’s Christmas list?

I miss real life events and mingling (plus snacks and an open bar...LOL) but kudos to brands for thinking outside the box and getting creative during these nutty times.

We made a list of the toys and games that we think would be fun for kiddos of all abilities! Hopefully we’ll be reviewing some of them for you soon!

#toys #specialneedsmom #neurodiverse #play #weknowplay #sweetsuiteathome
#specialneedsblogger

Bored in the house and I’m in the house bored, s

Bored in the house and I’m in the house bored, so... we’re very thankful for online programs like this live Zoom dance class!

@recessoakville is supported by a charitable community foundation that provides respite for families via cool social activities for kids with disabilities. Avery loved hanging with kids her age without her parents looking over her shoulder (her brother was a volunteer...I have eyes everywhere. Haha!).

She experienced the fun and freedom that all kids her age should.

The pandemic may have put these hangouts on hold, but thanks to the creativity and passion of this community, the fun continues!

Thanks for the dance class this morning @getlowdanceco! Avery loved it, cat critic “Simon Meowal” was on the fence. 🤣

#dance #activekids #moveyourbody

Her face says it all. That look of dismay is exact

Her face says it all. That look of dismay is exactly how I feel right now.

What day is it even? Monday? Saturday? Groundhog Day?

I’m tired and totally unmotivated. I’ve stopped working out. And my creative spark has dimmed.

At the beginning of this thing, I was on it. Aside from empathy for those falling ill, and concerns about us getting sick, I quite enjoyed lockdown. I liked having my family close. I did all kinds of projects and got sh*t done. But now I’m done. Even the littlest things take such an effort this week.

It was Avery’s cat’s birthday this weekend and if you know me, you’re aware that I live for this stuff. I’m the woman who threw a full-on dog wedding just for fun.

But @fureverkevin’s party was lame. I bought KitKats for dessert and a squeaky mouse toy. I didn’t even wrap it. No special decorations or cat themed games. Nothing. Bare minimum.

Of course none of this was for the cat. I’m not a psychopath. This kind of thing is for my daughter who gets such joy out of celebrations, big and small. So I feel guilty and sad about half-assing this one.

Summer is finally here and I’ve got no energy and zero focus.

I think I need a nap. And a revamped routine.

Anybody else feeling burnt out and guilty for being a sloth?

#boredinthehouse #coviddays #groundhogday #mentalhealth #parentinglife #specialneedsfamily

This photo was taken 8 years ago. Avery was so exc

This photo was taken 8 years ago. Avery was so excited to be buried in the sand with her cousins. That ear to ear grin...

We planned to recreate this pose every summer. But then I read about tube worms that live deep in the sand.

We won’t be taking any cousin photos at all this summer, sandy or otherwise. My family lives in the US and the borders are closed.

We are sad. Especially the little head on the left. She’s the saddest.

Keep safe everyone. Keep your distance. Wear your mask. And hopefully we can all be reunited with the friends and family we’re missing, next summer.

#family #summer #sandydays #cousins #memoriesmade

I’ve never considered myself to be a skilled gar

I’ve never considered myself to be a skilled gardener. However, I’m rather pleased to see my dogwood bush has sprouted!

#haha #treebark #furtree

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