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Hump Day Is Exhausting

Aug 31 2011

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Welcome! You might be here because you love a child with a disability. My daughter has a chromosome deletion/duplication which causes developmental disabilities, and epilepsy. Forever in Mom Genes is where I share stories and information about atypical parenting and family life. I'm glad you're here. Read more.

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Forever In Mom Genes

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I walked into the kitchen and saw this. ???⁣ ⁣

I walked into the kitchen and saw this. ???⁣
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She told me she was just practising for her MRI today. ⁣
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#tunnelvision #eyespyacattail #MRI #specialneedsmom #sickkidshospital #epilepsy

Four years since this tiny dancer took to the stag

Four years since this tiny dancer took to the stage and she still loves to perform. But more than simply being celebrated, she loves being included. She draws in the energy of the crowd and feels the lingering warmth and pride for weeks after. ⁣
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Dance, cheer, the school play—she and her peers are true superstars no matter the stage. ⁣
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But what we as the parents in the wings appreciate more than I can adequately express, is the quiet stars of the show—the teachers and coaches and volunteers who make all of this possible. We see you and without getting all mushy (too late... pass the kleneex) we are humbled by your passion, enthusiasm, and leadership. Thank you (in your words @wensen2) for encouraging our kids to fly! ⁣
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#inclusion #mentors #adaptive ⁣
#specialabilities #volunteers #IDD #intellectualordevelopmentaldisability #developmentaldisabilities ⁣
#disability #advocate⁣
#specialneeds #specializedneeds⁣
#disabilitysupport #epilepsy ⁣
#specialneedsmom⁣
#unique #speechdelay ⁣
#chromosomedisorder ⁣
#3Pdeletion #9Pduplication⁣
#foreverinmomgenes

Ontario Cheer Championships ✔️⁣ ⁣ Thanks c

Ontario Cheer Championships ✔️⁣
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Thanks coaches for another awesome routine! Look out World’s, here we come! 🤸‍♂️ 🏅 ⁣#teamcanada ⁣
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#specialabilitiescheer #specialneeds #adaptiveathlete #teammatesforlife #cheer

Yes I swear in front of my kids. I mean, I try not

Yes I swear in front of my kids. I mean, I try not to but I’m only human—a passionate and expressive human I might add. ⁣⁣
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And though I curse now and then, I don’t think it makes me a bad parent. Coarse language isn’t necessarily rude or offensive. It’s more the way words are wielded. ⁣⁣
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Of course I don’t want my daughter swearing like a trucker, but I do want her to know there are far worse words in the world. Like hate speech. I’d rather hear a curse word than a spiteful slur or a discriminatory jab any day. ⁣⁣
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And yes, my friends know me well. I love this jewelry so f*cking much. (I still can’t bring myself to full out swear on social media). ⁣🤷‍♀️😇⁣
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Full post on the blog and a funny story about my daughter’s adventure with the eff word. I’m still laughing. 🤣 ⁣(link in bio)⁣
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#goodgirlatheart #Iswear #parenting #specialneeds #lifelessons #wordsarejustwords

Off to deliver surprise Valentine’s around the h

Off to deliver surprise Valentine’s around the hood. ❤️ #ValentineNinja

Awww, she was so little back then. And hella fierc

Awww, she was so little back then. And hella fierce. LOL!⁣
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#fightclub #nothavingit #noregrets #patientbrother #siblings

This photo speaks volumes. ❤️ I super loved my

This photo speaks volumes. ❤️ I super loved my birthday party despite dreading the day for weeks. I know it’s just a number but whoah, it’s a loaded digit. So, sincere thanks to my forever sisters for making this “significant” milestone so special. ⁣
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I was just going through photos (avoiding actual work that needs to be done... #expertprocrastinatorlevel) and feeling quite verklempt to be honest.⁣
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I wasn’t thrilled about turning this age. It just sounds so damn old. But upon reflection, what a privilege it is. Seriously. There is just so much joy and fun and love in this life. And how lucky am I to be partnered with THIS guy? Even after 20+ years he still rocks my world. ⁣
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Anyway, I just wanted to acknowledge my gratitude. I’m one lucky old broad. ⁣
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#friendship #50 #notquiteaboomerbutclose #iateallthecupcakes

I wish I could take credit for her eggs-cellent co

I wish I could take credit for her eggs-cellent cooking skills but Avery’s awesome SERT at school (Thank you Mrs. B!!) and Creative Chefs class at @erinoakkids have taught her so much.⁣
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These yummy egg bites turned out so well!! Eat your heart out Starbucks.⁣
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Averism of the day: “There’s a lot of crack in here.” She meant bits of cracked shells. 🤣 ⁣
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#cookingwithkids #lifeskills #eggsbites #specialneeds

This face has Monday written all over it. #poutyl

This face has Monday written all over it.
#poutylips #troutymouth #oldpics #browneyedgirl #mondaymood

We could all use a mirror like this...⁣ ⁣ “Y

We could all use a mirror like this...⁣
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“You are so cool and intelligent and strong and fierce.” 💗

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