Tag - special needs

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When Your Child’s Speech Delay Gets Worse
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Goldfish Swim School Oakville
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Teaching Your Child With A Disability To Ice Skate
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When People Stare At My Child Who Has Special Needs
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Separated Siblings: She Waves Goodbye As He Leaves For High School
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25 Quotes About Parenting A Child With Disabilities
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A Trip To The Mall That Meant So Much More
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Special Gifts For Special Families
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Dear Parent Of A Newly Diagnosed Child…
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The Special Needs Parenting Sweet Spot

When Your Child’s Speech Delay Gets Worse

We started learning American Sign Language as soon as we found out about our daughter’s genetic disorder—one that is almost always associated with severe speech issues. We relied on a variety of ASL resources, but a favourite (and the most fun) was a PBS show called Signing Time. A friend gave us the DVD set which we watched a hundred times. It’s no longer on television, but you can find it on You Tube.  As Avery started verbally saying words, and eventually longer more complicated sentences, sign language went to the wayside. She was talking with actual, understandable words and it was the sweetest sound.  Two years Avery was formally diagnosed with a profound speech delay. We weren’t surprised, but we were hopeful that with maturity and hard work, her speech would improve. And it did. For a little while.  Since then, her speech has declined even more. Especially in the past few months. I tend to panic when I don’t know why things are happening. And for no apparent reason.  The ideas are there—she knows what she wants to say and she wants to say it, but she struggles to get the words out. Like, really struggles. It’s hard to watch.[…]

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Goldfish Swim School Oakville

We’ve been trying to teach our daughter to swim for years—on our own and through a variety of classes, but success has been elusive.  We were optimistic about an adaptive swim class offered by the city, but once again, progress was minimal. The pool was freezing—like blue lips, could barely make it through the class, frigid. It was also large and loud, with way too many distractions. The instructors tried their best, but aside from one-on-one instruction, there was no real distinction between this “adaptive” program and a regular community swim class.  I was sceptical when I heard about the Goldfish Swim School opening near us. I didn’t believe it would be any different from past swim school experiences.  But, we decided to give it a try and holy sh…allow waters! Avery’s swimming has dramatically improved after only a few months of weekly lessons. She was swimming confidently, and with proper technique, after only four classes!  I’ve since recommended Goldfish Swim School to everyone!! Friends, neighbours, strangers on the internet, random moms in the grocery checkout line. It’s just so exciting to have found a program that is fun, safe and effective. We love it so much that my son is[…]

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Teaching Your Child With A Disability To Ice Skate

I love my daughter. I enjoy skating. But I don’t love or enjoy skating WITH my daughter. In fact, I’d rather do anything else. However, she’s desperate to learn. I don’t understand her fascination, but I suspect she saw it on a television show and has taken a fancy to it. So we’re trying. And boy is it ever trying. People have said, “It’s not like skating is a vital lifeskill like swimming or something. So why bother?” I know. Skating isn’t an essential skill, but the heart wants what the heart wants… (so even if the heart’s mother can’t stand being cold, whaddayagonnado?) When I saw that Erin Oak Kids was offering a Family Skate program at a rink near us, I signed us up. Us. As in I have to be on the ice with her the whole time. Though there are some wonderful therapists and enthusiastic volunteers on the ice to help, this isn’t lessons. This is a designated block of time, a freezing cold ice block of time if I may, for families with kids with disabilities to have “fun” learning to skate. So. Much. Fun.  Do you hear the negativity here? I do. And I[…]

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When People Stare At My Child Who Has Special Needs

  When strangers stare at my daughter I feel embarrassed, angry, defensive, indignant. I feel all the feelings in no particular order.  Sometimes I make direct eye contact with the starer. Sometimes I call them on it. Sometimes I don’t.  It’s emotional for us when people turn to look at our kids. And when their stares linger, it’s hard to handle.    But I try to remind myself that different draws attention. It’s human nature to be curious. People aren’t generally cruel. They’re just trying to figure it out.  So last week when my son’s gaze fell upon a girl with Down Syndrome and his glance lasted a few seconds too long, and was perceived as a stare, I understand why her mother glared at him.  He looked upset after swim practice. Not only were his eyes stinging from the chlorine, he was feeling the sting of guilt because he’d upset the mother of a girl in his class.  He explained that when he got out of the pool he noticed a girl about Avery’s age standing on the pool deck waiting for her sister. He spotted a school crest on her shirt and he was trying to get a better[…]

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Separated Siblings: She Waves Goodbye As He Leaves For High School

My daughter packed her backpack weeks ago in giddy anticipation of returning to school. She asked me to paint her nails and “do her hair pretty.” She couldn’t be more excited to start grade six.  My son was in denial that summer was ending right up until the end. He gave little thought to his first day of high school outfit. He wasn’t even planning on brushing his hair until I “suggested” it. I pleaded with him to let me take him shopping, but he refused. “Mum, I’ve got enough clothes. I’m fine.” Kind of hard to take him seriously when he’s arguing his point in mismatched socks and pants that are miles too short.  But he’s in high school now. He’s a big boy. In short pants. His pants, his choice I guess. (Mind you, I went to the mall today and bought him a few new things against his will. I can’t have the kid looking like he’s been stuffed into shrunken kahkis all year.) High school… no longer at our local elementary. He’s moved on and this is the first time his little sister will be at school without him.  At first she didn’t make the connection. “What?[…]

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25 Quotes About Parenting A Child With Disabilities

Parenting a child who has a disability definitely has some unique challenges. Here are a few quotes that never fail to deliver a ray of sunshine on the cloudy days. Enjoy and please feel free to add your favourites in the comments.  1. “Motherhood is about raising and celebrating the child you have, not the child you thought you would have.  It’s about understanding that he is exactly the person he is supposed to be and that, if you’re lucky, he just might be the teacher who turns you into the person you are supposed to be.” ~ Joan Ryan 2.  “One of the great things that any community can do is not teach tolerance, but live tolerance, not talk respect, but live inclusivity.” ~ Michael Pritchard 3.  “The best and most beautiful things in the world cannot be seen or even touched- They must be felt with the heart.” ~ Helen Keller 4.  Don’t focus on what she can’t do. Focus on what she can do. Like a boss. ~ Lisa Thornbury 5.  “Parents of children with special needs create their own world of happiness and believe in things that others cannot yet see.” ~Unknown 6.  “Sometimes the things we[…]

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A Trip To The Mall That Meant So Much More

This post isn’t intended to be political, but his electoral “win” makes me worry about my daughter’s future. He who shall not be named doesn’t even try to hide his distain for people with disabilities. It makes me wonder if her life will be more difficult because he’s giving people the message that it’s okay to be intolerant and cruel. However, there’s a kindness army rising up against hatred and discrimination. Kids are being raised to believe in equity and love and compassion. We’re surrounded by it, basking in their warmth and inclusion.  My daughter’s school and neighbourhood friends treat her like the important person she is, worthy of respect and friendship.  Avery’s been asking to go shopping with friends for weeks. She doesn’t actually care about buying anything. It’s about the experience. And her purse. She brings it with her on special outings. Inside you’ll find her lip balm, her pretend debit card, her (bicycle) driver’s license and a handful of coins.  I drove my daughter and her two friends to our local mall to do some Christmas shopping.  I tried to stay in the background to give Avery the feeling of shopping on her own with her friends like[…]

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Special Gifts For Special Families

What do exhausted, stressed out parents really want? What’s an age appropriate gift for a child with autism? Is there an inexpensive toy suitable for a child with fine motor delays? Can certain games help with speech and language development and if so, are they actually fun? All good questions I’ll try to answer below—my merry gift to you this retail festive season. Parents, especially those parenting a child with special needs, rarely take the time to pamper themselves. The holidays are a perfect opportunity for you to gift them something that forces them to take a moment. Yes, I said “force them.” I know this from experience. #stubborn Presents To Pamper Parents:           Special parents can be painfully practical. Since we’re often at a loss for time, practical and useful is always appreciated. Practical Presents for Parents:         Sometimes it’s hard to know what to buy for a child with physical or developmental needs. When in doubt, ask the parents what might be appropriate. Here are a few ideas.  Gifts for Kids With Cognitive, Motor, and/or Speech Delays:               Happy gift giving!  Feel free to message me[…]

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Dear Parent Of A Newly Diagnosed Child…

The early days when you suspect something might be wrong with your child completely suck. Literally—the fear and worry sucks the life out of you to the point where you wonder if you have the strength to actually go on. But the day you hear the words, the actual diagnosis, is the worst day. It’s indescribably (though I’ll try) horrendous.  When we got the phone call that confirmed our daughter has a chromosomal disorder I was dumbstruck. I couldn’t make sense of  what was happening. There was a loud ringing in my ears that made it hard to think. I fled outside and gasped for air. I couldn’t breathe. I eventually came back in and sat quietly on the couch beside my husband and we cried.  A few months later our daughter ended up in hospital which is a despicable story in itself (doctors are wonderful people, but they don’t always see what you see. When a medical professional tells you that it’s all in your head, listen to your gut and do what needs to be done.) This is when further genetic testing revealed the extent of our child’s chromosomal deletion/duplication. The first few weeks with this new knowledge[…]

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The Special Needs Parenting Sweet Spot

It’s a struggle to stay rooted in the present. Memories of traumatic moments from the past seep in and thoughts of what “could” happen trickle through the cracks. These leaks can start to erode the “special needs parenting sweet spot.”  “Be mindful!” I remind myself constantly. “All the good stuff is happening now! If you don’t open your eyes and breathe, you’ll miss it.”  Sitting sandwiched between two conversations at my daughter’s adaptive soccer league last week I felt like my happy place was put in peril. As I sat on a cold metal bench watching wildly enthusiastic kids chase after soccer balls followed closely by their volunteer partners. I couldn’t help but hear the two conversations happening separately on either side of me.  One pair talked about their young children recently diagnosed with complicated disorders. The fear, the confusion, the anxiety—I remember it well. The “beginning” is a unique kind of difficult. So many questions, so much anxiety—parents reaching out in desperation to anyone who might have answers, or at the very least offer some guidance.  My stomach clenched as I listened to the despair in their voices. Though my compassion was overshadowed by my relief in having escaped the early[…]

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