Tag - My special girl

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The Little (Ear) Drummer Girl
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Invited
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Class Photos
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Did She Just Shush Me?
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Sometimes

The Little (Ear) Drummer Girl

The trouble with having a child with an astounding threshold for pain is…they have an astounding threshold for pain. Sure, there are times like during vaccinations or minor scrapes and bumps when it comes in handy, but mostly it’s just scary. If my daughter should ever cry out in pain, we know it’s serious.* Take the time she sidled up to the gas fireplace. Though it had been turned off for some time, the glass was still very hot and she burned a loonie sized section of her calf. Even a tiny burn is agony for most, but she didn’t even feel it. A few days ago Avery seemed slightly under the weather — unusually tired and very pale. She had a low grade fever and not much of an appetite, but she didn’t complain. When she woke up the other morning, weeping, I knew something was wrong. She told me her neck hurt (I’m sure she meant her throat), and her tummy, and her ankle too. Who knew “the ankle bone was connected to the ear bone” because an hour later, her ear drum burst. Our doctor confirmed the yellow liquid oozing from her ear was the result of[…]

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Invited

  It happened. Finally, joyfully, sweetly, my five year old received her first ever invitation to a friend’s birthday party. She tore open the envelope and exclaimed, “I party!” “I so happy,” she said, while I cried big, sucky tears. She asked, “Mummy sad?” No my sweet girl, I’m not sad. I’m thrilled for you. You deserve so much — fun and parties and all the great things that come with having friends who love you, for you. I want to tell this mother, the one who sent out the invitation, how much this means. I’m sure she has no idea.  Avery has carried the invitation around with her all morning and won’t put it down. And now, she wants to go out, like right now, and buy her friend a “bir-day pwsent.” The happiness on this child’s face and the excitement pulsing through her body reminds me, because sometimes I forget, that life is truly a celebration.  Party on big girl. Related: Close Your Eyes and Make A Wish

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Class Photos

A picture may be worth a thousand words, but the words may not always speak the truth.   Case in point, my kids’ class pictures.   My son’s photo depicts him as a social butterfly surrounded by hordes of adoring fans, the consummate centre of attention. In reality, he’s a quiet guy who keeps a small handful of friends close.   My daughter’s picture (below) on the other hand, tells the tale of a child on the perimeter of acceptance. She is the blondie at the end on the first row. A solitary loner at the end of the bench.   In this picture, my daughter may be set apart from her peers, but unlike her brother, she is a social butterfly. She is fully integrated in her classroom. There is no judgement among her peers and she is accepted for who she is.   At first glance, this photo could be unsettling for a family unaware of their child’s scholastic journey.  And not just because of the creepy masks I Photoshopped on my daughter’s classmates due to privacy issues.  Avery adores her teacher, her wonderful EAs and her loving classmates. She is made to feel like a valuable member[…]

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Did She Just Shush Me?

  Last week I took daughter with me on a “Mama is going out and doesn’t have a thing to wear” mission. We popped over to the Espirit outlet in hopes of finding a new shirt. Ever mindful of my…my…budget *shudder* I limited my quest to ONE item. Painful as it was, I sourced out a few tops to try on and headed to the change room…after I helped Avery pick up the pile of purple sweaters she had knocked onto the floor, put back the umbrella and two purses slung over her shoulder and removed the lavender tank top from around her neck. Shopping with a curious child is a challenge. However, how will she ever behave appropriately if she’s never given the opportunity to learn?   While I tried on the first shirt, Avery kept busy by yodeling. She found the echo of the empty change room area amusing. While I struggled out of the blouse (picture Houdini trying to escape from a straight jacket and chains), Avery began to hum.   Eventually her patience ran out and she attempted to escape under the door. I can’t really blame her. It was way more fun out there, unfolding[…]

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Sometimes

Sometimes when you have too much to say, you end up saying nothing at all. I’ve tried to write many times this week, intending to share tales of the first day of school, sweet pictures and silly stories. Instead of writing a word, I clicked “close” every time. Sometimes when life is too hard, you shut yourself off. You assure those around you that everything is fine and you try to believe it.  I feel guilty because others have struggles that are much harder than my own. I have a child with special needs. So what? So do many, many other parents. Our story is not unique. Avery is healthy and happy and beautiful and I should feel lucky. Or so I have been told. But some days, instead of lucky, I feel frightened and sad. I’ve always had the attitude that everything will be okay. This is our normal and life is good. It’s not perfect, but it’s good. It seems you can only go on for so long fooling yourself into thinking your life isn’t hard.  My life is hard. Avery is funny and loving, but she’s difficult. She doesn’t understand “danger.” She is always at risk and[…]

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