Tag - disability

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When Your Child With A Disability Is Told, “You Can’t Play With Us!”
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Pets Are Family
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When Your Child Chokes

When Your Child With A Disability Is Told, “You Can’t Play With Us!”

  My daughter loves playing at the park at the end of our street. She’d stay for hours if she could. But since she’s a child with a disability, she can’t go to the park by herself like her peers do—they can come and go as they please, but my kiddo has to drag her mother along. “Drag” makes me sound like an unwilling companion, but I’m usually content to supervise. Though some days, admittedly it’s inconvenient. And boring. After a few pumps on the swing and perhaps an (awkward) chin-up or two on the monkey bars, my thoughts quickly turn to, “I need to start dinner” or “I have to return that phone call by 5pm” or “I have to pee” or “I wish I brought more coffee” or “I really, really have to pee.”  But she’s a kid who needs fresh air, and climbing and swinging, and companionship, and your basic childhood fun, so I park myself at the park.  Yesterday was a beautiful spring afternoon so I was happy to spend some time warming the park bench.  Within a few minutes of arriving, the play structure filled with kids from Avery’s school. They quickly organized a game of[…]

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Pets Are Family

  People say we’re nuts for having so many pets. Three isn’t “so many” if you ask me, but I’m not one to split hairs—even the ones stuck to my black pants. Is life easier without a small herd of animals to take care of? Sure. Is it as rewarding? Not for us. When our daughter was about two and a half and still not walking, one of her physical therapists suggested we find something highly motivating to her to get Avery up off the floor and walking. Avery has always been obsessed with dogs. THIS would be her motivation. My sister-in-law has her own veterinary practice and she found the perfect dog for us—a mutt, part chihuahua, part terrier and part teeny-tiny wolf. He was about three years old, housebroken, quiet, not too big, and a RESCUE DOG in need of a loving home. We would be that home.   Within three months of adopting Roger, our girl was walking; then running after her canine companion. A few years later we adopted a second dog, Maya. We even hosted a dog wedding. No seriously, you can witness the Bow Wow Vows here. It can take people a lifetime to[…]

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When Your Child Chokes

  Not all parents of children who have a disability of some kind obsess. Admittedly, I do. I struggle to tame the worries that invade my thoughts and I tend to hover over my daughter. (Think helicopter blades whirling furiously over head, bubble wrap dispenser on the ready.) My child has global development delays, speech and gross motor issues, and seizures. Despite her diagnosis she has made incredible progress. For a child who doctors said may never walk or talk, she is doing both — in your face, science. Our girl is no longer a baby. She is active and bold and curious. To deny her independence and the chance to explore would be cruel, so I hold my breath and let her go. Up the stairs by herself; higher on the swings; in the pool, close by, but liberated from her water wings. As it is for any child, loosening their reins allows them to reach further. So despite my racing heart, I’m trying to give her space to grow. My other child, Avery’s big brother, laughs when I remind him to chew his food. To him, grapes are juicy mouthfuls. To me they are ominous orbs of imminent choking. I’m not completely insane though — I stopped cutting[…]

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