Tag - children with seizures

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I Like My EEGS Sunnyside Up
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EEG Results Are In

I Like My EEGS Sunnyside Up

  We kept our daughter up for most of the night to deprive her of sleep, on purpose. Consider it payback for all the nights she’s kept us awake. In your face, Avery! Mwah hahaha…   Kidding. She was scheduled for an EEG the next morning.   Having her good and exhausted prevents her from having to be sedated (she fell asleep naturally on the exam table within seconds) and it ensures her brain will be disorganized and stressed—perfect conditions for performing an exam to look for the abnormal brain waves associated with seizure activity. The same test last year revealed ‘moderate abnormalities.’ This meant Avery would remain on medication—the seizures were still there, suppressed by the meds, but skulking in the shadows. This year we were hopeful that even if the result wasn’t completely normal, there would at least be some improvement, indicating that Avery is slowly but surely growing out of this condition. No such luck. The results were the same. ‘Moderately abnormal.’ We’ll try again in a year. There’s time, things could still change. And in the meantime we’re fortunate to have found the perfect balance of medications, with no side effects, to suppress the seizures. When[…]

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EEG Results Are In

To the untrained eye, these wavy lines are a series of peaks and valleys forming scribbles across a page. It seems incredible to me that anyone can decipher their meaning. A neurologist can examine these lines and see inside my child’s brain — she’s breathing, she’s dreaming, she’s learning, she’s remembering; the lines tell a story. Every thought, every action, every emotion is recorded and preserved within these lines. To the casual observer these lines are a curiosity. To somebody with Epilepsy, these lines are a gauge. A disruption in the electrical current may reveal seizures lying in wait. Our daughter was diagnosed with Epilepsy at the age of three. Her initial seizures were fierce and long lasting. Luckily three years later, seizures are being managed effectively with medication. They are so well controlled that our neurologist suggested she may have outgrown the disorder. What a wonderful thought. An EEG would help determine if this was indeed the case. We were excited and waited anxiously for the results. Recently I witnessed a child having a seizure. Not my child, but I saw my daughter’s reflection in this child’s face. My heart breaks for this girl’s family who must endure seizure[…]

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