Category - Speech Delay

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When Your Child’s Speech Delay Gets Worse
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I Have A Few Choice Words For That Judgemental Woman
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The Time I Told My Child With Speech Delays To Stop Talking
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My Child Has A Profound Speech Delay
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The Sweetest Voice

When Your Child’s Speech Delay Gets Worse

We started learning American Sign Language as soon as we found out about our daughter’s genetic disorder—one that is almost always associated with severe speech issues. We relied on a variety of ASL resources, but a favourite (and the most fun) was a PBS show called Signing Time. A friend gave us the DVD set which we watched a hundred times. It’s no longer on television, but you can find it on You Tube.  As Avery started verbally saying words, and eventually longer more complicated sentences, sign language went to the wayside. She was talking with actual, understandable words and it was the sweetest sound.  Two years Avery was formally diagnosed with a profound speech delay. We weren’t surprised, but we were hopeful that with maturity and hard work, her speech would improve. And it did. For a little while.  Since then, her speech has declined even more. Especially in the past few months. I tend to panic when I don’t know why things are happening. And for no apparent reason.  The ideas are there—she knows what she wants to say and she wants to say it, but she struggles to get the words out. Like, really struggles. It’s hard to watch.[…]

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I Have A Few Choice Words For That Judgemental Woman

My daughter is CHATTY. There’s rarely a moment of silence with her around unless— a) she has a mouthful of food. b) she’s sleeping (though she talks in her sleep a fair bit). c) I’m brushing her teeth but even then, she manages to hum. d) she’s absorbed in sending a text (which is essentially digital talking) or watching TV.  Her chattiness is amazing considering her “profound speech delay.” Perfectly formed sentences be dammed, if she makes an observation or has a question, you’re going to hear about it.  She might know what she wants to say, but finding the right words is a struggle. I’m having a similar issue at the moment. I’m forgetting the names of simple household items and stumbling over my words. Turns out this is a very real and very annoying side effect of peri-menopause. Oh hoorah, good times ahead.  Anyway, that’s to say, I get it. It’s incredibly frustrating to know what you want to say, but due to wonky wiring between the word bank in your head and your mouth, the words escape you.  As Avery’s family, we almost always know what she’s trying to say and we usually let her finish on her[…]

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The Time I Told My Child With Speech Delays To Stop Talking

  Yesterday I posted a story about our daughter’s “profound” speech delay and you left such kind and supportive comments. It means a lot to my husband and I that people care so much. But it also makes me feel like a bit of a dick. Like my sharing/over-sharing about recent trials is an attempt at garnering sympathy or even worse, asking for a pat on the back for stellar parenting. I’m not a stellar parent. I’m just a parent who is crazy about her kids and wants the best for them. Pretty par for the course I’d say. We all want that for our children. We can’t even help it—it’s instinctual. A few people commented on how patient I am. Very lovely to say, but it made me laugh. If only they had seen me this morning… We were running late and I asked Avery to put on her socks. The first time I made eye contact, got her attention by saying her name, and spoke slowly and simply—”Avery, put on your socks.” She didn’t put on her socks. I found her a few minutes later playing with ‘Veterinarian Barbie’ so I asked, “Avery, what did I ask you[…]

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My Child Has A Profound Speech Delay

  My parents claim they’re grateful that our early home movies are without sound because….me. Blab, blab, blab. I’ve always been a chatty Kathy Lisa. I have a lot to say, but I listen too.   My son conversates just like me (real word even though Spellcheck is screaming “Can’t you see the red squiggly line??”). He starts talking from the time he rolls out of bed and continues asking questions and sharing ideas and jokes and facts and observations all. day. long. But he too knows how to listen. His big brown eyes open wide while I’ll telling him a story and he pauses before he speaks to make sure he really processes what’s been said. I love this boy. As for our daughter, she has a lot to say as well. The trouble is her “talker gene” is broken. She knows what she wants to say, but struggles to get the words to line up in an orderly fashion to march them across her vocal chords and out to listening ears around her.   When Avery was a baby we were advised to teach her sign language as speech would not come easy. In fact, we were warned that[…]

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The Sweetest Voice

  No matter how often I hear my children’s voices–and I hear them often since I gave birth to two chatterboxes–I’m never deaf to how sweet they are. Not the words necessarily, but the actual sound; the unique pitch and tone that make them easily identifiable in a crowd. Didn’t I read something about that and penguins? Oh nature, you rock my world. As we sorted through Christmas ornaments last week the kids sang carols, in the way kids do–loud and out of tune. My son sang in a prepubescent high pitched trill that only dogs can hear. While my daughter hummed in tone than can only be described as the lowest on the register. Granted the girl has a cold, but wow. Coupled with her inability to carry a tune we jokingly referred to her as “The Monotone Baritone.” Out of tune and off pitch, it was still music to my ears. Listening to them talk to each other, uttering phrases they’ve clearly heard from me, like mocking birds, makes me smile and reminds me that little ears hear all. *mental note: quit cursing* As I walked my girl through the school parking lot she chattered away, repeating herself,[…]

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