Archive - March 2017

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Three Generations of My Family Fell For Financial Fraud
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Epilepsy
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Disabilities Are Not “Special Needs”
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Are You Happy? If Not, Why?

Three Generations of My Family Fell For Financial Fraud

These days it’s unlikely you’ll be pickpocketed in the city square by singing and dancing orphans (think “Oliver Twist”). It’s more likely you’ll be mugged without even leaving your home. Financial fraud can happen anywhere, anytime, to anyone…and you aren’t even compensated for your loss with a jaunty dance number.  I have a few infuriating experiences of financial fraud to share that have been committed against three generations of my family this past year. Kids, seniors, and people with disabilities especially, are ripe for the picking. These shameless thieves don’t discriminate. Hopefully by sharing what happened to us, (along with some helpful tips from TD!) you’ll avoid the sting of scams like these…. and the new ones cropping up every day. Gen Z—Tweens and Teens My teen is uber tech savvy. Without him I wouldn’t know which remote to use to turn on the TV. But, this doesn’t mean he’s immune to fraud. In fact, he was duped into forking over money (ahem, MY money) for an app. He thought he was paying a one-time-only fee. It turns out the payment was charged to my credit card automatically every month. When I finally noticed and figured out what the charge[…]

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Epilepsy

Sometimes I forget our daughter has Epilepsy. But only for a second. We’re incredibly lucky her seizures are suppressed by medications, but it’s impossible to forget the traumatic years when they were not.  Avery’s first major seizure happened when she was three and a half. I shared the story of what happened in every painful detail. I’m sharing the link again HERE. Even after all this time, I find it difficult to read. Even though it was nearly eight years ago now, those seizures just before Avery turned five were brutal.  Every year since she has an EEG to assess the seizure activity in her brain. And every year while we wait for the results we hope for the news that there is no seizure activity or that the electrical abnormalities remain unchanged, in equal measure.  It may sound odd to hope for no improvement, but if her brain activity appears normal the neurologist will take her off anticonvulsants. And this could mean more horrifying seizures.  When neurons discharge inappropriately they cause abnormal electrical impulses in the brain. This results in seizure activity which can lead to abnormal motor activity or convulsions, and loss of consciousness, and if not controlled as soon[…]

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Disabilities Are Not “Special Needs”

It’s taken a decade of research into genetics and specific diseases and disabilities for me to gain even a fraction of understanding of my daughter’s syndrome. I still have no idea what I’m doing half the time. And I make plenty of mistakes.  Case in point—until recently I didn’t even realize that the label “special needs” was outdated and unacceptable. I’m immersed in this community, yet I was unaware. And if missed this, maybe you did too? I’m not easily offended. I curse, I make gross jokes. I try not to take what people say too seriously and I try to cut people some slack when they say the wrong thing. We all slip up. Words don’t tell the whole story. Our actions and intentions define who we are.  But, when we are told point-blank that something is offensive, we should pay attention. Isn’t it our responsibility as compassionate citizens to do no harm whenever possible? And seriously, updating our vocabulary costs us nothing. Let’s take the r-word for example. I’ve written about it quite a bit over the years. The word itself is harmless. It means late or delayed. When used appropriately, it should cause no harm. But it does.[…]

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Are You Happy? If Not, Why?

If you’re happy and you know it, clap your hands. What, no clapping? Aren’t you happy?!  Well, don’t let that make you sad because not many of us are consistently happy. According to the studies anyway. Science has us pegged as a sad sack of SOBs just trying to make it until cocktail hour.  My daughter however, she’s perpetually happy. She gleefully claps her hands all the time for no apparent reason. It’s like a happiness explosion where her joy just can’t be contained and the sudden burst of happy claps is a way to let it out.  I consider myself a very happy person, but I can’t say I feel “happiness explosion happiness” in adulthood very often. But alas, nobody is as happy as Avery. She doesn’t fit the typical mould. She doesn’t worry. She doesn’t know fear. And there’s zero hate in this kid’s world. It just doesn’t exist for her. I’d say she’s 90 per cent happy—9 per cent ‘meh’, when she’s tired or told, “No, you can’t host a play date right now.” And 1 per cent legitimate sorrow, usually when she’s missing a loved one. The rest of the time, bliss.  I get the sense[…]

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