Archive - 2011

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Friends In All The Right Places
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Are You Sleeping, Are You Sleeping, Brother John? Cuz We’re Not
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BUSY is The New Four Letter Word?
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Filed Under Perspective

Friends In All The Right Places

Many of my friends don’t “do Facebook” or god forbid…Twitter.  So how do they stay connected? Do they pop out for a quick coffee or grab lunch with a pal? Pick up the phone to check in? Send a quick email?  If they do these things on a consistent basis, they’re doing a lot to nurture important relationships. If they’re NOT doing things things on the regular, then…(quick, somebody pass me a soapbox) they risk missing out. Some may argue social media is a “time sucker.”  Sure, it can be.  Updating photos to my Facebook page takes a few minutes, responding to emails takes a few more and tweeting, well that can take a few minutes to a few hours. Is digital networking addictive? Yup. It takes time and it’s addictive? But, is it worth it?  Absolutely. Here’s why: Facebook – I have family and friends who live FAR away.  Having the chance to look at their photos and share my own, keeps us connected.  Do I update my status every minute to share every detail of my life in real-time?  Hells no.  If I have something important to share. I share. If not, I read what OTHER people have[…]

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Are You Sleeping, Are You Sleeping, Brother John? Cuz We’re Not

There’s a reason why new parents obsessively discuss their child’s sleep routine. Did the imp sleep through the night? How was their nap? Is your baby a “good sleeper?” These conversations stem from true desperation. An exhausted sleep deprived adult if not properly caffeinated will soon look like this. Especially on Hump Day.  Our daughter has always been a great sleeper. As an infant she slept too much in fact. (I had wake her to feed). At about eight months, she developed sleep apnea, but it didn’t affect the longevity of her slumber. She’d snort and gasp for air, but remained fast asleep. Her apnea comes and goes and changes in severity for no clear reason. But no matter how severe, her stellar sleeping pattern continued. At the beginning of December however, she started waking in the night. Usually around 2 am—awake and ready to rock for hours. We tried everything to solve the mystery. Is she too hot, too cold, is there light shining in her window somehow, nightmares, nightsweats, nightanythings?? Are Avery’s teeth hurting her and is this waking her up?  (If you could hear the grinding going on in this poor child’s mouth, you’d know this is a possibility). Hubby[…]

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BUSY is The New Four Letter Word?

I’m busy. So very busy. I can’t believe how busy I am. And he’s so busy. And she’s too busy. And don’t even bother with them, they’re really quite busy. And things aren’t going to suddenly get less busy. Unless you become incarcerated. Or you slip into a coma. Work, kids, activities, social engagements, chores, errands, the pursuit of happiness–these things take time and we get busy and yes, there’s gettin’ busy, which also requires time. A little anyway. Hi honey. I often ask incredulously, “How is it possible that I’m SO busy? I work from home, part-time.” The fact is, life is as busy as it we allow it to become. That’s deep. I need to italicize that. Having a full and active life isn’t a bad thing. But, when it causes you to shirk certain responsibilities like calling your ninety year old grandpa on a regular basis or to let important relationships slide, busy becomes a four letter word. We can always find time to surf the net, watch a movie, get our hair done. We’re not too busy for those things. So when we tell someone we’re too busy to see them, to call them, to check[…]

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Filed Under Perspective

  Tonight I came across a file on my computer I’d named “Perspective.” I’d forgotten all about it.  When Avery was first diagnosed, I scoured the internet for hours on end, searching for medical information or the latest genetics research. Occasionally, I’d stumble upon something beautifully personal.  When I did, I’d cut and paste it into my file and visit often to read the words that helped to put our new world into perspective. These are two of my favourites. Welcome To Holland by Emily Perl Kingsley I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this… When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The[…]

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